My Macular and Me - podcast cover

My Macular and Me

Delve into the world of macular disease with the Macular Society. Join us as we hear from eye care professionals, providing expert insight on the latest developments in research and evolving treatments. Listen as we also share first-hand stories and explore the support available for those living with sight loss. For more information and additional support visit: https://www.macularsociety.org/ 

Last refreshed:
Follow this podcast in the Metacast mobile app to refresh it and see new episodes.
Download Metacast podcast app
Podcasts are better in Metacast mobile app
Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more

Episodes

When and why are lasers used to treat patients with retinal conditions?

Send us your feedback Dr Liam Sullivan, consultant ophthalmologist at Cambridge University Hospital, joins My Macular and Me to discuss lasers as treatment for patients with retinal conditions, such as diabetic retinopathy and retinal vein occlusion. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with m...

Dec 21, 202348 minEp. 19

Latest advances in genomics for inherited retinal disease

Send us your feedback Gavin Arno, senior scientist and researcher from the department of genetics at Moorfields Eye hospital joins us for this episode of the My Macular and Me podcast. Gavin joins us to discuss the latest advances in genomics for inherited retinal disease. Our understanding of genetics and how DNA works has grown considerably in the last decade. This understanding has transformed researchers’ ability to carry out genetic analysis on individuals and has aided in the detection of ...

Dec 07, 202342 minEp. 18

How can job seekers with macular disease overcome barriers to employment?

Send us your feedback For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experience with employment. They discuss the barriers that employers encounter when thinking about hiring someone with sight loss, and whether these barriers are real or perceived. Listen to find out more about how partially sighted job seeke...

Nov 16, 202349 minEp. 17

The emotional support available for those living with macular disease

Send us your feedback Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when she felt she was at her lowest. This episode looks at the emotional impact of a diagnosis of macular disease and the support that is available from the Society. A diagnosis of macular disease can be extremely upsetting. Finding out t...

Nov 02, 202345 minEp. 16

ECLOs and registering as sight impaired

Send us your feedback For this episode of the My Macular and Me podcast we are joined an Eye Care Liaison Officer (ECLO). and a rehabilitation officer as they discuss their roles in supporting people with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with their f...

Oct 18, 202316 minEp. 15

New laser treatment for diabetic macular oedema (DMO)

Send us your feedback For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has been available for many years, and another much newer laser. It was found that the newer laser could clear up mild DMO without producing a burn on the re...

Oct 04, 202346 minEp. 14

What is sorsby fundus dystrophy?

Send us your feedback Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about sorsby fundus dystrophy. For further information on sorsby fundus dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/ The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their...

Sep 20, 202337 minEp. 13

BrightPage: a tool to help you read with macular disease

Send us your feedback Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way for reading. This would not be as a continuous scroll, but rather one that mimics the movements that our eyes make whilst reading. This way of readin...

Sep 06, 202333 minEp. 12

An insight into the Macular Society research team

Send us your feedback Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular and Me podcast to give an overview of the team and bring an update on the latest developments in macular research. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support t...

Aug 16, 202341 minEp. 11

How effective are techniques to manage visual hallucinations?

Send us your feedback Professor Robin Walker joins us for this episode of the My Macular and Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss. Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support group via our counselling service. This is done over the telephone and you can speak to other people experiencing CBS as well as one of our professional...

Aug 02, 202335 minEp. 10

Inherited macular disease - Should I know my gene?

Send us your feedback Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular and Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free informatio...

Jul 19, 202341 minEp. 9

Latest research into Best disease

Send us your feedback Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successful, could pave the way for gene testing to be used for Best disease and other autosomal dominant macular dystrophies, and genetic conditions in other d...

Jul 05, 202344 minEp. 8

What is myopic macular degeneration?

Send us your feedback What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD). The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries...

Jun 22, 202344 minEp. 7

What is Punctate Inner Choroidopathy (PIC)?

Send us your feedback In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to...

Jun 08, 202351 minEp. 6

Diabetes and your eyes

Send us your feedback Diabetes can have a huge impact on our sight. In this episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence....

May 17, 202344 minEp. 5

Securing employment with sight loss

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Zsuzsi Szabo of Support 4 Sight and Nick Thomas from North Wales Society for the Blind, who share their employment advice for people diagnosed with a sight condition. Finding a job can be a challenge at the best of times, but it can be so much harder to find work when you have a sight condition. If you or a family member need advice or support in finding work, or for anything else, please make sure to reach o...

May 03, 202344 minEp. 4

Charles Bonnet syndrome in children

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information an...

Apr 19, 202347 minEp. 3

Latest developments into Stargardt disease research

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Professor Andrew Lotery of the University of Southampton. He speaks to the Macular Society about the latest news regarding research into Stargardt disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular ...

Apr 05, 202344 minEp. 2

Cost of living - Support for people living with sight loss

Send us your feedback Our first episode welcomes our Working Age and Young People's Service Manger, Colin Daniels. The focus of this episode is benefit entitlements, cost of living contingencies and grants for equipment. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help people overcome their worries and retain their independence. We provide free information and support to those with macular disease, along with the...

Mar 16, 202341 minEp. 1
Hosted on Buzzsprout
For the best experience, listen in Metacast app for iOS or Android