Valuable cGVHD Products and Resources

• Viki’s presentation will cover the following organ systems re: cGVHD.
Skin, Fingernails:
• If you do not feel greasy from the lotions you apply, you are not using enough!
• Fun facts about the sun—we all need some!
• You did not go through a transplant to sit at home in the house—just do not burn. A sunburn is your enemy.
• Fingernail care: keep them filed and avoid gels nail polishes
• Steroids and bruising—what to look for
• Fish oil explained
Joints:
• Edema GVHD explained
• Cramps: this is what you need!
• Stretching and Acupuncture: try gentle yoga and gentle message Eyes:
• Eyes Need Lubrication
• Preservative free single use tears/eye drops
• Steroid eye drops: consult with your ophthalmologist
• Scleral Lenses discussed: grant available through your doctor
Bone Mass:
• Osteopenia and osteoporosis discussed
• Bone density scans
• Importance of weight bearing exercise
• IV preps explained
Mouth:
• Dry mouth and certain candy to try
• Biofeedback helpful too
• Does your toothpaste burn? Try children’s toothpaste. Here’s why!

Lips: Steroid ointment might be an option
• Steroids: oral antifungals
• Visit your dentist
• Trouble swallowing? Listen up
Lungs and Sinusitis
• Short of breath? Importance of catching lung cGVHD issues asap
• Importance of promoting lung function—go take a walk
• Medical Marijuana – Prescription please!
GI Issues
• Is it GVHD?
• Correct diagnosis is so important
• Wasting syndrome/protein loss
• Food Diary Tips
Female and Male Issues
• GYN exams, early menopause and vaginal dryness
• Males: impotence, decreased testosterone and lesions
Mood Changes and Fatigue
• Steroids and their role
• Adrenal glands explained
• Suicide
• Depression
• Get your thyroid checked
• Anti-Depressants can help
• It’s okay to feel depressed
• Resources and more resources: www.nbmtlink.org
• Talk about it!

National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

nbmtLINK Website: https://www.nbmtlink.org/

nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINK

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The nbmtLINK YouTube Page can be found by clicking here.

To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd