Tips for Thriving with cGVHD with Licensed Social Worker Jennifer Gillette

• Thriving to find the best version of you after transplant
• Find ways to reconnect with the world around you
• It is not easy: it can be a slow process, your personal earthquake
• Increased tolerance for the unknown
• Exhaustion
• Losses along the way
• Patience is important: a marathon not a sprint
• Look for ways to be even just a little bit stronger each day
• Energy issues
• Chemotherapy
• Your support system
• Emotional aspects including depression
• Fatigue examined: what time of the day is best for you and your energy level.
• Chemo brain: make lists, etc.
• Delegate
• Exercise, diet, nutrition and vitamins
• Light Therapy/Fatigue: Click here for our program on Fatigue
• Reprioritize your day
• Avoid naps if possible
• Caffeine tips
• You can control how you handle what is affecting you.
• Focus on the positive
•You are a blessing to so many
• Mark your progress: healing is happening
• Reclaim what you can
• Have a life list and/or a gratitude list and keep adding to the list
• Express yourself, communicate: Caringbridge.org
• Get out of the house when you can
• Find your passion
• Lunch & Learns: Click here for relevant topics!
• Caregivers Thriving: Secondary Survivors: Click here for our book on caregiving.
• Use “I” Statements
• Treat yourself good!
• Persistence, patience and hope. You got this!

National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

nbmtLINK Website: https://www.nbmtlink.org/

nbmtLINK Facebook Page:  https://www.facebook.com/nbmtLINK

Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

The nbmtLINK YouTube Page can be found by clicking here.

To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd