Macular Chats - podcast cover

Macular Chats

BrightFocus Foundationblubrry.com
Macular Chats are a series of free, informative audio conversations hosted by Macular Degeneration Research, a BrightFocus Foundation program, featuring retina specialists and other eye care experts who will discuss various aspects of living with macular degeneration and geographic atrophy. Topics will include macular degeneration treatments, remaining independent, and promising research on the horizon. #Ophthalmology #Macular #MacularDegeneration #GeographicAtrophy #VisionLoss #LowVision
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Episodes

Caring for Your Mental Health After AMD Diagnosis

This Mental Health Awareness Month, join psychologist Ed McDaniel for an honest conversation about the emotional impact of being diagnosed with age-related macular degeneration (AMD) and/or geographic atrophy (GA). Drawing from both his professional expertise and personal experience, Ed will share strategies for coping with anxiety, grief, and loss of independence—and how to start important conversations about mental health with your eye doctor. Learn about resources that can help you feel less ...

May 28, 202550 min

Clinical Trials for AMD

Join us for a special discussion on clinical trials for macular degeneration. Experts from Genentech will provide an overview of the company’s work in age-related macular degeneration (AMD) and geographic atrophy, including the role of clinical trials and how they work. They will also share details about an upcoming clinical trial for geographic atrophy, an advanced form of dry AMD, and what potential participants can expect.

Apr 30, 202517 min

Light Therapy and Macular Degeneration: What You Need to Know

Join us for a conversation about light therapy and macular degeneration, where we’ll explore how different types of light—blue, red, and sunlight—affect the retina, the science behind light therapy, and the newly approved Valeda red light therapy. Plus, we’ll answer listener questions about seasonal affective disorder (SAD) lights, red light therapy for early-stage AMD, and more. Bring your questions to ask our guest expert!

Mar 26, 202545 min

Geographic Atrophy: Making An Informed Treatment Choice

With two FDA-approved treatments now available for geographic atrophy, an advanced form of dry age-related macular degeneration, we’ll explore how to navigate treatment options, engage in shared decision-making with your healthcare team, and maximize your eye health. February is Low Vision Awareness Month, so we’ll also discuss support options for those living with vision loss.

Feb 26, 202552 min

Wet AMD Treatments: Updates, Challenges, and Future Innovations

Join us for an in-depth discussion on the latest developments in wet age-related macular degeneration treatment. We’re partnering with the American Society of Retina Specialists (ASRS) to bring you an overview of current treatment options, the impact of the Avastin shortage, and alternative treatments. We will also explore advocacy efforts by ASRS and the American Academy of Ophthalmology to address these issues.

Jan 01, 202549 min

Adapting to Life with Low Vision

This Macular Chat episode will cover practical tips for maintaining quality of life with low vision. From adaptive activities to resources like large print books, there are resources to help you live well.

Nov 20, 202452 min

Taking Charge of Your Geographic Atrophy

Geographic atrophy is an advanced and severe form of dry age-related macular degeneration that, if left untreated, can lead to irreversible vision loss. Hear from guest expert Dr. Veeral Sheth about the latest treatments, research breakthroughs, and how to protect your vision.

Oct 30, 202445 min

Understanding Stargardt Disease

Join us for an in-depth discussion on Stargardt disease, a rare inherited form of juvenile macular degeneration that affects about 1 in 10,000 children and young adults. Learn about the latest in diagnosis, genetic testing, and promising treatments, which researchers are also evaluating in geographic atrophy.

Sep 25, 202452 min

Promising Studies Funded by Macular Degeneration Research

Macular Degeneration Research, a BrightFocus Foundation program, is supporting 49 active research grants around the world. Join us as our Scientific Affairs team highlights a few of these groundbreaking research projects working toward earlier detection and prevention, treatments, and a cure for macular degeneration.

Aug 28, 202431 min

How Diet and Nutrition Impact Macular Degeneration

This Macular Chat episode will explore how diet and nutrition influence the risk and progression of AMD and discuss the vital role that the gut microbiome plays in overall human health.

Jul 31, 202458 min

Geographic Atrophy: Your Questions Answered

Geographic atrophy is an advanced and severe form of dry age-related macular degeneration that can lead to permanent vision loss. Guest expert Dr. Philip Niles will share what you need to know about identifying, preventing, and treating geographic atrophy and delve into the landscape of available treatments.

May 29, 202440 min

Resources to Help You Live Well with Age-Related Macular Degeneration

After a macular degeneration diagnosis, the best way to adapt to vision loss is to learn new ways of doing things. Ed Haines discusses the resources available from the organization Hadley, which provides practical, social, and emotional support to older adults adjusting to vision loss.

Apr 24, 202439 min

Macular Degeneration: Get the Facts

Age-related macular degeneration is a leading cause of vision loss in Americans aged 60 and older. Guest speaker Gayatri S. Reilly, MD answers questions and shares all the facts you need to know about wet and dry macular degeneration. #MacularDegeneration #Macular #Retina

Feb 28, 202442 min

Maintaining Emotional Wellness: Living with AMD

After a diagnosis of macular degeneration many individuals experience a range of emotions, including grief, anxiety, or depression. Our expert guest will define and discuss different emotions, as well as provide specialists and additional coping strategies and resources to consider.

Jan 31, 202436 min

Can Vision Loss Be Reversed? Exploring Stem Cells and AMD

Dr. Kapil Bharti’s lab at the National Eye Institute recently started the first U.S. phase I/IIa trial to test autologous iPSC-derived RPE patch in AMD patients. Currently, he is co-developing a dual RPE/photoreceptor cell therapy with Opsis Therapeutics. He has given several keynote lectures and won several awards for his revolutionary work on developing ocular cell-therapies. He serves on the advisory board (pro bono) of several companies and patient-advocacy groups. His current work as a Seni...

Nov 29, 202351 min

New Option for Anti-VEGF Treatment for Wet AMD

Guest speaker W. Lloyd Clark, MD, discusses a new anti-VEGF treatment option that is available for wet AMD. Dr. Clark specializes in the treatment of vitreous and retinal diseases. He is also dedicated to the advancement of new treatments for retinal diseases through his involvement with clinical trials for the newest therapies for age-related macular degeneration, diabetic retinopathy, and retinal vein occlusions.

Oct 25, 202347 min

Treatment Options for Geographic Atrophy

Guest speaker Dr. Veeral Sheth, discusses geographic atrophy, an advanced and severe form of dry age-related macular degeneration, and the landscape of treatments that are currently available.

Sep 27, 202342 min

Surviving Without Driving

Katherine Freund, Founder and President of Independent Transportation Network of America, discusses how aging impacts our driving skills, explores alternatives to driving, as well as what you can do if there are no currently driving resources in your area.

Jul 26, 202338 min

Macular Degeneration Research: Update on Research Funding

This episode featured guest speaker Preeti Subramanian, PhD, who oversees the Macular Degeneration Research and National Glaucoma Research programs at BrightFocus Foundation. Dr. Subramanian highlighted some of the exciting research currently funded by BrightFocus.

Jun 28, 202325 min

Patient Stories About Geographic Atrophy

This episode featured Rob Howden and Diane Marshall, both currently living with geographic atrophy, the advanced form of dry macular degeneration. They give a firsthand account of daily living with geographic atrophy and discuss the importance of diagnosis.

May 31, 202337 min

Managing Wet AMD: Basics and Treatment

This episode featured Dr. Surendra Sharma, Senior VP of Medical Affairs at Outlook Therapeutics. Dr. Sharma discussed the difference between Wet AMD and Dry AMD, who is at risk for Wet AMD, and what treatment options are available.

Apr 26, 202317 min

All Your Questions Answered About Macular Degeneration

This episode featured Joshua Dunaief, MD, PhD, professor of ophthalmology at the Perelman School of Medicine at the University of Pennsylvania. Dr. Dunaief spoke about symptoms and treatments for macular degeneration, including a new study of zebra fish to understand how they regenerate eye cells. Participants asked questions regarding eye injections, the risk factors of drusen turning into geographic atrophy and how important a healthy diet is to help prevent macular degeneration.

Mar 29, 202343 min

Patient Voices: Living with AMD

This episode featured guest speakers Maureen Foley and Sheila Klein, who are both currently living with age-related macular degeneration (AMD) and gave firsthand accounts of daily living with low vision. They also discussed the biggest challenges and the resources they find most helpful while living with AMD.

Feb 22, 202347 min

Increasing Independence with Assistive Technology

This episode featured Jerry Feliz, Access Technology Director at Massachusetts Association for the Blind and Visually Impaired. He discussed how to use a screen reader and apps the blind can use to help with daily activities. Jerry also spoke about his YouTube channel and he let participants know that he does private consultations for anyone that might need extra help increasing their independence with assistive technology.

Feb 01, 202331 min

Advanced Macular Degeneration: An Update on an Investigational Medical Device

BrightFocus Foundation hosted this monthly chat featuring Dr. Maria Richman, a Low Vision Rehabilitation Optometrist from Shore Family Eyecare in New Jersey. Dr. Richman discussed Advanced Macular Degeneration and provided an update on the investigational medical device called the SING Implantable Miniature Telescope. She discussed the improvements and benefits made to the new implantable telescope device as well as the criteria that is needed in order to join the clinical trial for the device....

Nov 30, 202252 min

Adult Stem Cells as a Treatment Target for AMD

This event featured Dr. Sally Temple and Dr. Jeffrey Stern who are both co-discoverers of stem cells in the human retinal pigment epithelium at the Neural Stem Cell Institute, who addressed the role of stem cells in central nervous system development, maintenance, and repair. There was also discussion about cell transplants to replace retinal pigment epithelium (RPE) and clinical trials for stem cell therapy and AMD.

Oct 26, 202235 min

Understanding Dry AMD and Geographic Atrophy (September 2022)

Understanding Dry AMD and Geographic Atrophy.” The event featured Dr. David S. Liao, a board-certified ophthalmologist at the Retina-Vitreous Associates Medical Group, who specializes in the medical and surgical treatment of diseases of the retina and vitreous. The hosts discussed a proposed and promising pharmaceutical under investigation for geographic atrophy (GA) using a targeted C3 therapy. There was also discussion about other possible treatment for Age-related Macular Degeneration (AMD) a...

Sep 28, 202231 min

Occupational Therapy for Low Vision: What You Need to Know

Featuring Low Vision Specialist, Allysin Bridges-German, Clinical Assistant Professor at Towson University, who explained the role of occupational therapists and what they can offer to those with low vision. The hosts also talked about what people can gain from their services for macular degeneration and shared exercises for those with low vision.

Jul 27, 202226 min

Living Your Best Life with Low Vision (June 2022)

The Chat features Ranjoo Prasad, OD, Staff Optometrist at the Philadelphia VA Medical Center and Board Member of VisionLink Philadelphia. Learn how to improve your quality of life by using low vision devices, making adaptations to your hobbies and tasks, making the most of lighting, and finding services to assist in identifying the best strategies for you.

Jun 29, 202236 min
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