Long COVID Real Talk Podcast - podcast cover

Long COVID Real Talk Podcast

Katherine Marieβ€’longcovidrealtalk.com
* Discusses how Long COVID affects the daily lives of the millions of people worldwide. * For patients (and their friends/family) with: * Long COVID/Post Acute Sequelae of COVID-19 (PASC) * Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) * Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia * Post-Exertional Malaise (PEM) Listen to episodes here --> www.longcovidrealtalk.com Email: [email protected]
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Episodes

S4 E11: Saying Goodbye To The Old You To Embrace The NOW You

S4 E11: Saying Goodbye To The Old You To Embrace The NOW You Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 If you would like to tell your story on the podcast or have any questions or comments β€” or just want to say hey! You can email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is fo...

Jan 07, 2025β€’15 minβ€’Season 4Ep. 11

Have Yourself A Merry Little ChristmasπŸŽ„πŸŽ

Thank you for being a part of the podcast and hope you have a very Merry Christmas! πŸŽ„πŸŽ Have yourself a merry little Christmas Let your heart be light From now on our troubles will be out of sight Have yourself a merry little Christmas Make the Yuletide gay From now on our troubles will be miles away Here we are as in olden days Happy golden days of yore Faithful friends who are dear to us Gather near to us Once more Through the years we all will be together If the fates allow Hang a shining st...

Dec 25, 2024β€’2 min

S4 E10: Why We Are Grieving Extra Hard During The Holidays

S4 E10: Why We Are Grieving Extra Hard During The Holidays Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 If you would like to tell your story on the podcast or have any questions or comments β€” or just want to say hey! You can email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for ...

Dec 24, 2024β€’14 min

S4 E9: Escape to New Orleans

S4 E9: Escape to New Orleans Current Prescribed medications: Psychotropic meds (for anxiety, depression and ADHD) Abilify (for chronic fatigue/Long Covid) Singular (for Long Covid/mast cell stabilization) Low Dose Naltrexone (for Long Covid) Valtrex (for Long Covid) Nifedipine (for dysautonomia/blood pressure) Carvediol (for dysautonomia/elevated heart rate) Pepcid (allergies/Long Covid) Zyrtec (allergies/Long Covid) Metformin (regulate blood glucose - a study showed people on Metformin were les...

Dec 20, 2024β€’14 min

S4 E8: β€œWhy Isn’t Anyone Talking About This Crisis Besides Us?” (w/ Matthew)

S4 E8: β€œWhy Isn’t Anyone Talking About This Crisis Besides Us?” (w/ Matthew) πŸŒŸβ­οΈβœ¨πŸ’« You can reach Matthew at: [email protected]. COVID-19 Longhauler Advocacy Project - Website: https://www.longhauler-advocacy.org - Facebook group: https://m.facebook.com/groups/c19lap/?ref=share&mibextid=S66gvF Long Covid, MD Podcast: - Website: LongCovidMD.com - Episode on the Long COVID Moonshot Bill: https://open.spotify.com/episode/41sgZ6WRKEx896lARUPDpd?si=tUBtJ6zOTpKrRhxfnl8Tug Please subscribe, ...

Dec 17, 2024β€’33 minβ€’Season 4Ep. 8

S4 E7: How To Survive Holidays/Events (w/ Zeest Khan, MD)

S4 E7: How To Survive Holidays/Events (guest: Dr. Zeest Khan) πŸ’«πŸŒŸβ­οΈβœ¨ You can find Zeest on her podcast: Long Covid, MD Email her at: [email protected] https://podcasts.apple.com/us/podcast/long-covid-md/id1716072073 Website: LongCovidMD.com Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/41830...

Dec 13, 2024β€’38 minβ€’Season 4Ep. 7

S4 E6: Life Update

S4 E6: Life Update Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not inte...

Dec 10, 2024β€’9 minβ€’Season 4Ep. 6

S4 E5: The First Thing You Have To Do To Start Healing From Long COVID

S4 E5: The First Thing You Have To Do To Begin Healing From Long COVID Spoiler alert: it’s ACCEPTANCE. Fighting like you have in the past will not work. Every day, every time you have to do something differently than you used to β€” accept it, let go of how you used to do it pre-COVID, and make the next sane choice. :) Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 L...

Dec 06, 2024β€’17 min

S4 E4: Epic Fail At The Zoo

S4 E4: Epic Fail At The Zoo Zoo visit did not go so well today, looking at creative ways to make this work out better next time! Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for infor...

Dec 03, 2024β€’7 minβ€’Season 4Ep. 4

S4 E3: We Just Need To Hang On During These Times

Season 4, Episode 3: We Need To Just Hang On During These Times Having Long COVID really sucks. Sometimes all you can do is grieve your old life and try to hang on while you navigate your new one. Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Goo...

Nov 29, 2024β€’11 minβ€’Season 4Ep. 3

S4 E2: How To Go To An Amusement Park With Long COVID

S4 E2: How To Go To An Amusement Park With Long COVID Tips and tricks for people with Long Covid, ME/CFS, POTS, and dysautonomia to help prepare for a trip to a local amusement park. And remember β€” you’re not alone in this! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: l...

Nov 26, 2024β€’7 minβ€’Season 4Ep. 2

S4 E1: β€œIt’s Not Hopeless” - Vicki’s Story

S4 E 1: β€œIt’s Not Hopeless” (w/ Vicki) How to connect with Vicki: www.mycreativecorner3.com Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for informational and entertainment purposes o...

Nov 22, 2024β€’42 minβ€’Season 3Ep. 26

BONUS EPISODE #7: I Have A Favor To Ask

Bonus Episode #7: I Have A Favor To Ask Discusses recent news of a family member being diagnosed with stage 4 cancer, requests positive thoughts/prayers/vibes from podcast listeners. Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text...

Nov 20, 2024β€’9 min

Season 3, Episode 25: Why I Got Bamboozled/How To Avoid Getting Scammed

Season 3, Episode 25: Why I Got Bamboozled/How To Avoid Getting Scammed Discusses recent encounter with a scammer and explores how a disabled state may influence gullibility. In other words, the allure of being able seemingly help someone even when you can barely take care of yourself due to disability/Long Covid. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 L...

Nov 19, 2024β€’21 minβ€’Season 3Ep. 25

Season 3, Episode 24: How To Brush Your Teeth With Long COVID

Season 3, Episode 24: How To Brush Your Teeth With Long COVID Discusses two recommendations from my dental hygienist and dentist to help people with Long COVID perform dental care/oral hygiene when symptomatic. ​Electric toothbrush - More expensive than regular toothbrushes but Ideal for us when our arms are tired/aching and it is hard to move our arms around. - I think of it as an investment to avoid having to pay for fillings, etc. - I have an Oral B iO toothbrush but any electric toothbrush w...

Nov 15, 2024β€’8 minβ€’Season 3Ep. 24

Season 3, Episode 23: β€œIt Was Hell & It Is Hell” (guest: Lydia)

Season 3, Episode 23: β€œIt Was Hell & It Is Hell” (guest: Lydia) Listen to Lydia’s story of going from working full time and being a homeowner to becoming homeless and everything in between. Grateful to hear her powerful story! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 E...

Nov 12, 2024β€’31 minβ€’Season 3Ep. 23

Season 3, Episode 22: The Mental Game of Long COVID (guest: Laurie)

Season 3, Episode 22: The Mental Game of Long COVID Our guest, Laurie, returns to finish up the part of the interview that was cut off last time by the recording and to explore some other topics, including the Mental Game you have to play when you have Long COVID. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.fac...

Nov 08, 2024β€’31 minβ€’Season 3Ep. 22

Season 3, Episode 21: When You Know More About Long COVID Than Your Doctor

Season 3, Episode 21: When You Know More About Long COVID Than Your Doctor Discusses how it felt to have symptoms minimized/not be believed at my recent appointments which leads to the question: is it our job to educate our doctors on Long COVID? Please subscribe, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: lon...

Nov 05, 2024β€’14 minβ€’Season 3Ep. 21

BONUS EPISODE #6: My Long COVID Clinic Appointment

BONUS EPISODE #6: My Long COVID Clinic Appointment Discusses recent appointment at the Stanford Long COVID clinic and gives general overall treatment update. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is...

Nov 02, 2024β€’8 minβ€’Season 3Ep. 28

Season 3, Episode 20: How To Go To A Baby Shower With Long COVID

Season 3, Episode 20: How To Go To A Baby Shower With Long COVID Tips and tricks for people with Long Covid, ME/CFS, POTS, and dysautonomia to help prepare for a baby shower/travel. And remember β€” you’re not alone in this! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: lo...

Nov 01, 2024β€’22 minβ€’Season 3Ep. 20

Season 3, Episode 19: Snoring Mommy

Season 3, Episode 19: Snoring Mommy Discusses the difficulty of parenting with Long COVID and feeling very limited in that regard. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for informational and ente...

Oct 29, 2024β€’12 min

Season 3, Episode 18: Long COVID & The Risk Of Suicide

Season 3, Episode 18: Long COVID & The Risk Of Suicide If you are considering suicide, please call 988 or your local suicide/crisis hotline. - Long COVID evokes significant emotional stress as it is an untreatable disease that causes severe distress … social isolation and loss of income can result in significant distress (Sher, 2021). - Long COVID may induce a mental health condition or aggrevate a previously existing condition… the combination of systemic infection, hypoxia and Neuro inflam...

Oct 25, 2024β€’12 minβ€’Season 3Ep. 18

Season 3, Episode 17: What To Do If You Start Crying At The Drop Of A Hat

Season 3, Episode 17: When You Start To Cry At The Drop Of A Hat Discusses the profound effect Long COVID can have on emotion regulation. Here are the levels of support discussed: inpatient hospitalization = highest level of support, you are staying in a secured inpatient hospital unit with safety checks every 15 minutes partial hospitalization program (PHP) = you come to the outpatient place of the hospital for several hours a day but sleep at home intensive outpatient program (IOP) = you come ...

Oct 22, 2024β€’17 minβ€’Season 3Ep. 17

Season 3, Episode 16: When $#!+ Gets Real (guest: MJ)

Season 3, Episode 16: When $#!+ Gets Real Guest star 🌟 my sister, MJ, who is a fellow long hauler, discusses the moment when having Long Covid got real for her. The shout out mentioned during this episode is Dr. Zeest Khan of the Long Covid, MD podcast. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/...

Oct 18, 2024β€’11 minβ€’Season 3Ep. 16

Season 3, Episode 15: Aiming For The Goldilocks Zone (guest: Michael)

Season 3, Episode 15: Aiming for the Goldilocks Zone Guest star 🌟 my husband, Michael, discusses the three types of days and how to best conserve and sustain one’s energy. Please like, subscribe, share and leave a 5 star 🌟 🌟🌟🌟🌟review wherever you are listening! It really means a lot and helps other long haulers find the podcast! Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217

Oct 15, 2024β€’7 minβ€’Season 3Ep. 15

BONUS EPISODE #5: My Cardiology Appointment

BONUS EPISODE #5: My Cardiology Appointment Discusses most recent appointment to see the cardiologist in an attempt to seek treatment for symptoms of POTS and variable blood pressures based on body positioning. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google V...

Oct 12, 2024β€’10 min

Season 3, Episode 14: What A Post-Exertional Malaise (PEM) Episode Feels Like

A snapshot into the life of someone living through a Post-Exertional Malaise (PEM) episode after minimal exertion the previous day. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Google Voice/Text: 1-650-382-2217...

Oct 11, 2024β€’16 minβ€’Season 3Ep. 15

Season 3, Episode 13: Staring At The Ceiling

I was able to try putting music in the background but there is no way to adjust the volume so I was on the fence as to whether to keep the music or not. Today my brain is not working well and is very tired. I hope if you are having a similar day that it passes quickly. Remember - you are not alone! Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real T...

Oct 08, 2024β€’17 minβ€’Season 3Ep. 13

BONUS EPISODE #4: My Infectious Disease Appointment

BONUS EPISODE #4: My Infectious Disease Appointment Discusses most recent appointment to see the infectious disease physician in an attempt to get on an antiviral since there were such favorable results from both Paxlovid trials. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help others find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: longcovidrealtalk...

Oct 05, 2024β€’18 min

Season 3, Episode 12: Something To Look Forward To + Measuring Your Worth

This episode discusses the importance of having things to look forward to in order to keep your mental health on point. Furthermore, discusses the universal dilemma of finding one’s worth. Whether you are able-bodied or not, your worth is exactly the same, you are not worthless because your productivity has diminished compared to what you used to be able to do. Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcas...

Oct 04, 2024β€’10 minβ€’Season 3Ep. 12
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