Here we have Brett Jones and his mother April Jones talking to us about what it was like for Brett to get diagnosed in High School with Klinefelter syndrome. April knew something was up when Brett was in the first grade. She fought over the years and never gave up. At 17 Brett was diagnosed with Klinefelter syndrome and after his 1st and 2nd shot of testosterone, his mom says "I finally got to meet my son, he was smiling, laughing and learning to enjoy life". After many years of struggles, Brett...
Oct 28, 2020•58 min•Season 1Ep. 18
Richard who was diagnosed with Klinefelter syndrome at the age of 16 is now 71 years old living an incredible life in the Pacific Northwest. Richard started his career as a teenager delivering newspapers and working the night shift of a cleanup crew. After graduating from a university with a degree in business he worked his way up the corporate ladder to become a member of the board of directors of a large company as well as their CFO. He quit at the age of 52 to enjoy his life and concentrate o...
Oct 21, 2020•35 min•Season 1Ep. 17
Cresta is the mother of Cole who is 2 years old and was diagnosed with Klinefelter syndrome thru a NIPT (noninvasive prenatal testing). Cresta has some incredible things to share about her pregnancy and has decided to change her career path to become a genetic counselor. She wants to be able to provide more accurate information for our community and also provide more helpful information for her son. This is a podcast you do not want to miss! www.livingwithxxy.org
Sep 07, 2020•42 min•Season 1Ep. 16
Angela and David Heyde were blessed with a son 14 months ago. Angela was 42 years old when her son Adam was born. They talk about receiving their sons Klinefelter syndrome diagnosis through a NIPT or (Non-Invasive Prenatal Testing). When faced with overwhelming emotions and their doctor knowing nothing about Klinefelter syndrome, they went to google looking for answers, only to find negative and outdated information. They talk about overcoming the challenges they were faced, and Adams's bright f...
Aug 31, 2020•36 min•Season 1Ep. 15
Mike Christoff found out he had Klinefelter syndrome at 27 when he was trying to have kids with his first wife. Mike has a BS in graphic design and works as a UX designer. He loves to get outside into the wilderness where he lives in Utah, take photos, go hiking, and enjoy spontaneous exploring. We recommend everyone who listens to this podcast who wants to better understand Klinefelter syndrome. Mikes social media can be found here: @mikemantx @redaardvark_design
Aug 24, 2020•38 min•Season 1Ep. 14
The mother of a two-year-old boy shares her recent shift in managing her son's early intervention and her family's overall approach to raising their son with Klinefelter syndrome. www.livingwithxxy.org
Aug 17, 2020•47 min•Season 1Ep. 13
The father of a two-year-old boy shares his recent journey of fully accepting and embracing his son's unique personality & interests. He opens up about how his lifelong thoughts about fatherhood limited his relationship with his son. He learned to embrace his son having Klinefelter syndrome. www.livingwithxxy.org
Aug 09, 2020•28 min•Season 1Ep. 12
Stefan was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate since his diagnosis and has attended many conferences over the years meeting a wide range of people with Klinefelter syndrome and all different age groups. We are glad to have him on the show. Here is his website . You can also contact Stefan on Facebook.
Jul 11, 2020•49 min•Season 1Ep. 11
This episode is all about nature, free play, and how it has helped Kat's son Leo who is three years old and has XXY. I began thinking over our journey and our introduction to Free Forest School. Free Forest School is an international organization where children and caregivers meet in nature with no toys for unstructured and child-led play. https://www.freeforestschool.org/ https://livingwithxxy.org/...
Jun 25, 2020•43 min•Season 1Ep. 10
Living with xxy is a Nonprofit 501.c.3 Charitable Organization raising awareness about Klinefelter syndrome - 47 xxy. We are here to help people all over the world learn more about this condition. By listening to our podcast you will hear voices of our community share their personal stories about overcoming challenges they faced and rising above the outdated information. More information can be found on our website. https://livingwithxxy.org/
Jun 15, 2020•2 min•Season 1Ep. 11
Evan Flores was born and raised in NYC his entire life. He never left and met his amazing wife Sabrina on August 19th, 2010 After 3 to 4 years of trying to have a family, Evan and Sabrina decided to go in for testing to see why nothing was working. After testing, Evan was diagnosed with Klinefelter syndrome and was in utter shock. “How is it even possible for someone to have an extra chromosome,” he said. Evan and Sabrina did Micro TESE and IVF in the same go and he is blessed with a miracle bab...
Jun 11, 2020•33 min•Season 1Ep. 8
Geoff Kruck 42 years old, lives just north of Melbourne, Australia. Geoff found out the hard way he had Klinefelter syndrome. When he got married to his wife, he didn’t have an overbearing desire to have children. Geoff was just thrilled he was marrying his best friend. He thought starting a family would come naturally down the road. Geoff says "you just assume it’s going to happen for you when you’re ready." Geoff was featured in Healthy Male Australia . Living with XXY is a Nonprofit Charitabl...
Jun 02, 2020•50 min•Season 1Ep. 7
Richard and Rosalie Bregante share information on what it was like to raise their son, who was born in 1985 when information for Klinefelter syndrome was very limited. https://livingwithxxy.org/
May 20, 2020•30 min•Season 1Ep. 6
Andrew was diagnosed with Klinefelter syndrome at the age of 16 after waking up one morning saying his testicles were hurting. A trip to the urologist and several doctor visits later he found out why. He talks about what it was like to be diagnosed, being developmentally behind his peers, and how he caught up with life at 22. He is actively involved with raising awareness online and getting his bachelor's degree in cybersecurity.
May 14, 2020•35 min•Season 1Ep. 5
Ryan Bregante shares what it was like growing up and going through grade school and middle school. From bulling to believing in himself and self-advocating. He also talks about how he got started raising awareness for Klinefelter syndrome and forming a non-profit organization to better help this amazing community come together to break down stigmas created by out of date information.
May 12, 2020•25 min•Season 1Ep. 4
Taking you all back to freshman year of high school as if it was yesterday. Some key talking points are about being in an English class with 4 Japanese students, myself, and a teacher. Also how I coped with bullying due to being a slow reader. Playing sports freshman year and attending homecoming. I hope you are able to learn more about my story and journey with Klinefelter syndrome. https://livingwithxxy.org/
May 02, 2020•18 min•Season 1Ep. 3
What it was like for Kelsey to be diagnosed with Klinefelter syndrome at 27 years old while trying to build a family. Kelsey talks about when doctors told him he would not be able to have kids, that he wasn't going to let that stop him. Even with the unknowns, emotions and anxiety Kelsey overcame the challenges of infertility using donor sperm with his wife. Today they have two amazing and beautiful children who are 11 and 8 years old. https://livingwithxxy.org/ Book mentioned by Kelsey https://...
Apr 29, 2020•49 min•Season 1Ep. 2
We welcome you to join and subscribe to our brand new podcast series for Klinefelter syndrome awareness. This is our introduction to what the podcast will be all about and how we will grow over time. This podcast gives the voices of our community a chance to share the spotlight. We look forward to having you. Www.livingwithxxy.org
Apr 19, 2020•10 min
