In this podcast Orlaith Cormican a PhD student and Nurse chats with Maire Treasa and shares her findings from the research she undertook over the last number of years exploring psychosocial vulnerability in caregivers of individuals with a chronic blood cancer. She talks about the impact that caring for someone has on all aspects of a caregivers life, the life adjustment and the crucial role they play on the patient journey. She also talks about caregivers who are potentially more at risk of bec...
Nov 19, 2024•35 min•Season 2Ep. 5
In this engaging podcast, Marie Treasa Ni Cheallaigh chats to Ally Bryne, whose husband was diagnosed with Multiple Myeloma in 2021. Sharing her family's experience, they discuss everything from diagnosis to fundraising to spreading awareness and the impact of Michael’s diagnosis has had on their young family. Thanks for listening Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion....
Nov 18, 2024•30 min•Season 2Ep. 4
In this podcast, legendary hurling manager Michael Bond, shares his experience of living for a number of years with cardiac AL amyloidosis. Chatting with our host MT, Michael outlines his previous cardiac health, and how he initially attributed his symptoms including shortness of breath to his underlying condition. Michael talks about the importance of advocating for one’s own health and pushing for further investigations when symptoms persist. He candidly shares his journey from diagnosis to tr...
Oct 29, 2024•27 min•Season 2Ep. 3
In this podcast, Maire Treasa Ní Cheallaigh chats to sisters Rachel and Laura , whose mum was diagnosed with multiple myeloma in 2016. Sharing their experiences, they discuss everything from the initial shock of the diagnosis, to the limited information available for families of myeloma patients, touching on important issues such as patient autonomy, supporting someone close to you with myeloma, and the emotional impact that comes with a loved one receiving a multiple myeloma diagnosis. Thanks f...
Mar 08, 2024•32 min•Season 2Ep. 1
In this podcast, Episode 1 of the 2nd Series and our second in the Living with Amyloidosis series, Darren Foard and Angelique Smit, nurse experts from the Royal Free Hospital in London, provide an excellent overview of Amyloidosis focussing on disease symptoms, the patient's journey and diagnostic investigations to confirm AL Amyloidosis . They discuss their role in assisting patient navigate their diagnosis and outline the referral pathway for Irish patients for further investigation at the Nat...
Feb 15, 2024•38 min•Season 2Ep. 1
In this podcast Prof O’ Dwyer provides an excellent overview of effective treatments in Multiple Myeloma . He has seen the development of many new drugs leading to improved survival in MM patients over his career and he discusses these in detail. He highlights the role of the immune system and the development of immunomodulatory agents to treat Myeloma. Prof O’Dwyer explains the treatment options at diagnosis and the decision making process regarding treatments at relapse. Drugs discussed includ...
May 24, 2023•59 min•Season 1Ep. 16
In this podcast Dr John Quinn explains how AL Amyloidosis , a rare illness which is not fully understood, can often be tricky to diagnose. Early diagnosis, however, is key to minimise organ damage and treatments have improved over the past 10 years with high response rates piggybacking off myeloma treatments. There is no typical Amyloidosis patient and many may have been feeling unwell for 9-12 months before a diagnosis is made. Symptoms of Amyloidosis vary among patients and include generalised...
May 10, 2023•30 min•Season 1Ep. 15
In this final podcast of the series, Journalist, ex-Irish Times correspondent, Kerryman, and Multiple Myeloma patient Michael O’Regan discusses his experience of living with the condition. Michael's chat with Maire Treasa was recorded as part of the podcast series launch. In this engaging and honest account of Michael's personal story he outlines his diagnosis and treatment journey, which was complicated by the fact that it was his second cancer diagnosis. His first being a tumour on his leg bac...
Jul 19, 2021•27 min•Season 1Ep. 14
In this podcast Professor Siobhan Glavey , provides an update of the rapid developments in managing Multiple Myeloma . Professor Glavey explains how the future has never been more hopeful as significant improvement in treatment options has resulted in unprecedented progression free survival (PFS). Today not only are patients living longer, they have a healthier quality of life. Professor Glavey explains the many variables in managing myeloma and the importance of a personalised approach, using t...
Jun 28, 2021•30 min•Season 1Ep. 13
In this podcast Dr Norma Jean Murphy , Chartered Senior Clinical and Counselling Psychologist , chats to Maire Treasa about overcoming the overwhelming reactions patients may feel at diagnosis of Multiple Myeloma from shock, disbelief, anger, sadness, loss and for some relief they finally have a diagnosis particularly as many patients may have been unwell for some time. She explains there is no right way or wrong way to deal with a diagnosis, each person’s experience is unique and each patients ...
Jun 23, 2021•31 min•Season 1Ep. 12
In her engaging conversation with Maire Treasa , Ruth Kilcawley Senior Nutritional Support Dietitian at University College Hospital, Galway describes the impact of what we eat on our physical health. Ruth outlines the role of good diet and nutrition in managing cancer, reducing infections and improving Multiple Myeloma patients quality of life. Ruth stresses the importance of maintaining strength whilst undergoing treatment. She shares advice on how to balance and manage food intake. Ruth explai...
Jun 14, 2021•41 min•Season 1Ep. 11
In this podcast, Dr Denis O’Keeffe , Consultant Hematologist explains that Multiple Myeloma will in the majority of patients come back, however today many options for treating and controlling the relapsed/refractory disease exists and patients survival has greatly improved. Dr O’Keeffe is keen to point out patients cannot stop Multiple Myeloma from coming back but it is important to maintain a healthy lifestyle. Dr O’Keeffe advises early recognition of the disease relapse is possible due to clos...
May 25, 2021•26 min•Season 1Ep. 10
In this podcast, Ann shares her personal experience of living with Multiple Myeloma for over 5 years. Although, her multiple myeloma has relapsed more than once and requires ongoing treatment, she is living well and is hopeful for the future. Ann' s engaging conversation with Maire Tresa provides advice on the importance of taking control of your life, being active and surrounding yourself with supportive people when coping with this relapsing, remitting cancer. She describes how learning to adj...
May 25, 2021•31 min•Season 1Ep. 9
In this podcast, Nurse Liz Higgins, Transplant Co-Ordinator at St James Hospital , Dublin provides a detailed account of the autologous stem cell transplant patient pathway. Liz explains the role of stem cells, how stem cells are harvested and later given back to a patient following high dose chemotherapy. Although, not curative, ASCT aims to treat Multiple Myeloma , prolong disease control and improve overall survival. Liz summaries the eligibility criteria and assessment process required prior...
May 17, 2021•42 min•Season 1Ep. 8
In this podcast, Theresa Meenaghan an Advanced Nurse Practitioner in Haematology, discusses the importance of early recognition and early intervention of treatment side effects. By raising the red flag early she explains we can maintain patients on treatment longer and get the best results. Theresa highlights how newer multiple myeloma treatments are less associated with the traditional side effects of chemotherapy, but have their own unique side effect profile. Theresa outlines very clearly the...
May 05, 2021•37 min•Season 1Ep. 7
In this podcast, Dr Gerard Crotty , Consultant Hematologist explains Monoclonal Gammapathy of Undermined Significance (MGUS) a non-cancerous condition of the plasma cells and the slow growing cancerous process or early form of myeloma, Smouldering Multiple Myeloma. Dr Crotty explains how treatment outside a clinical trial is not indicated in patients with either condition, however close monitoring is required. For patients living with MGUS only a small no of patients will progress to Multiple My...
Apr 28, 2021•37 min•Season 1Ep. 6
In this podcast, Joanna Sweeney a systemic family therapist, explores the impact and challenge of " Not Knowing " following a diagnosis of Multiple Myeloma . " Not knowing " what MM is, what it means for me, for my family, not knowing how to cope and make sense of all the changes. Joanna discusses understanding loss following a diagnosis and finding empowerment. She outlines the importance of building resilience, finding inner strengths, meaning and purpose in the patient and family unit. She al...
Apr 21, 2021•27 min•Season 1Ep. 5
In this short episode Prof Paul Browne , Professor of Haematology at Trinity College, Dublin, outlines Important information on managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications....
Apr 12, 2021•7 min•Season 1Ep. 4
In this podcast, Caroline Devery shares her inspiring personal journey from mild symptoms of a ‘painful swollen leg’ to a diagnosis of Multiple Myeloma. She gives an open an honest account of her treatment plan from initial treatment, through Stem Cell transplantation to maintenance therapy, all whilst planning her wedding! Her story provides great insight, information and support for all patients living with Multiple Myeloma and their families. Multiple Myeloma Ireland: Website Facebook Twitter...
Mar 24, 2021•50 min•Season 1Ep. 1
In Part 2 of a two part podcast, Prof. Paul Browne continues his conversation on managing Multiple Myeloma . In this episode Prof Browne outlines the importance of supportive treatments and the role of patient in managing their Multiple Myeloma . He also provides an update on the latest research and developments in Multiple myeloma. Prof Paul Browne is a Professor of Haematology at Trinity College, Dublin and Consultant Haematologist and Director of the National Adult Stem Cell Transplant Progra...
Mar 22, 2021•23 min•Season 1Ep. 3
In this podcast, part 1 of a 2 part series, Prof. Paul Browne outlines the pathway to a diagnosis of Multiple Myeloma . He provides details on the treatment approach to control and manage Multiple Myeloma, all from an Irish perspective. An excerpt specific to Infections and vaccination management in Multiple Myeloma is provided in part 3 . Prof Paul Browne is a Professor of Haematology at Trinity College, Dublin and Consultant Haematologist and director of the National Adult Stem Cell Transplant...
Mar 22, 2021•32 min•Season 1Ep. 2
