“Blind Man’s Bluff” Part Two, Peutz-Jeghers Syndrome Community

First, we join our heroine Geri at her job interview at the local Independent Living Center as we play another scene from our original play, “Blind Man’s Bluff”.  Starring Kris Yates, Mary Ann (Tidwell) Boussard, Doyle Saylor, Leah Gardner, Jan Santos & Patty Nash. From the memoir of the same name by Geri Taekens. Then Adrienne Lauby talks to Stephanie Sugars about a community of people living with a rare genetic disease, Peutz-Jeghers Syndrome.  The e-group she facilitates is celebrating its tenth year anniversary this month. These 250-300 people, who live with Peutz-Jeghers Syndrome, face decades of dangerous medical procedures and difficult reproductive questions.  They engage with each other from many countries, ages and income levels.  How do they handle the news of a miracle cure misinformation about medical procedures, abortion & fertility topics, death among their members and other potentially dangerous moments? The post “Blind Man’s Bluff” Part Two, Peutz-Jeghers Syndrome Community appeared first on KPFA.