Britt Johnson returns to the podcast to chat about filing for disability benefits, the continued stigma that comes from not looking sick, and the tenacity required to find a new normal for her physical and mental health. Follow Britt on Twitter , on Instagram , and on her blog . The resource Britt mentioned during the conversation about disability can be found at allsup.com . Run Time - 38:33 Send your feedback to feedback@justtalkingpodcast.com ....
Aug 08, 2018•39 min
This week I'm joined by Mike Lawson for a conversation about the joys of theater, redefining personal efforts at diabetes advocacy, the challenges of drawing rabbits, and his new book, "Open Up Your Bag - A Diabetes Picture Book". Visit diabetesdoodles.com to Mike's book. Follow Mike on Twitter @mrmikelawson and t1international.com to learn more about the #Insulin4All movement. Run Time - 33:01 Send your feedback to feedback@justtalkingpodcast.com ....
Aug 01, 2018•33 min
Ernesto Ramirez returns to the podcast to talk about the birth of his daughter and adjusting to parenthood. We also discuss his new role at Evidation and the growing anticipation for a breakthrough moment in making clinical studies more accessible. Visit ernestoramirez.com to keep up with Ernesto's personal and professional projects. Follow Ernesto on Twitter @eramirez . Run Time - 45:20 Send your feedback to feedback@justtalkingpodcast.com ....
Jul 24, 2018•45 min
Stacey Simms returns to the podcast to discuss Children with Diabetes annual Friends for Life conference, the community fostering potential of Facebook groups, recent developments about the privacy of closed Facebook groups for patient communities, and podcasting with your neighbors. This CNBC story was the foundation for our conversation about Facebook groups. Visit diabetes-connections.com to listen to Stacey's podcast. Run Time - 34:51 Send your feedback to feedback@justtalkingpodcast.com ....
Jul 17, 2018•35 min
This week I'm joined by Dr. Karen Schrier, Associate Professor of Games/Interactive Media, Director of the Play Innovation Lab, and Director of the Games and Emerging Media program at Marist College for a conversation about video games in academia. Specifically, we discuss opportunities to discuss ethics in game design and how discussion about and around video games can lead to broader education opportunities. Visit karenschrier.com to learn more about Karen's work and read up on her published b...
Jul 11, 2018•40 min
Lilly Stairs, Head of Patient Advocacy at Clara Health, joins me for a discussion about her life with multiple chronic conditions, her work at Clara Health, the importance of clinical trials, and her podcast, Patients Have Power. You can learn more about Clara Health at clarahealth.com and listen to Patients Have Power . Follow Lilly on Twitter @lillystairs and lillystairs.com . Run Time - 47:32 Send your feedback to feedback@justtalkingpodcast.com ....
Jun 26, 2018•48 min
>Dana Lewis returns to the podcast for a biannual update on the latest from the #WeAreNotWaiting movement. We also discuss her Red Hat 2018 Women in Open Source Community Award, the joys of international travel, her ongoing research project, Opening Pathways, and her new book about celiac disease. You can learn more about OpenAPS at openaps.org and Dana's research at openingpathways.org . Follow Dana on Twitter @danamlewis . Go to bit.ly/booksbyDanaMLewis to check out Dana's new book. Run Tim...
Jun 19, 2018•50 min
This week, Michelle Boise joins me to talk about her role at Beyond Type 1, their DKA Awareness campaign, and her recent longform story featured on previouslyhealthy.org. You can learn more about Beyond Type 1 at beyondtype1.org and read Michelle's feature at previouslyhealthy.org . Run Time - 40:38 Send your feedback to feedback@justtalkingpodcast.com ....
Jun 12, 2018•41 min
This week Virtue Bajurny returns to talk about mental health and chronic illnesses. We dig into the value of peer support in patient communities, approaches to mental health balance, and also John Woo movies. Trust me. You can learn more about Virtue's work at diabetestalk.ca and insulinpump.ca . Run Time - 46:22 Send your feedback to feedback@justtalkingpodcast.com ....
Jun 05, 2018•46 min
Robert Gluck joins me this week to discuss the rise of soccer in the United States, our time working together at the American Diabetes Association, his role as a Human Factors Engineer within the Veterans Health Administration, and the importance of proper user-centered design in health care. You can connect with Robert on LinkedIn at linkedin.com/in/robertlgluck . We talked a lot about user-centered design, if you want more visit nngroup.com and uie.com . Run Time - 37:56 Send your feedback to ...
May 30, 2018•38 min
This week I'm joined by Travis Preston to discuss his work as a filmmaker, the latest construction updates in northeast Atlanta, and his upcoming documentary "Race to Tokyo". We also mix in our perspectives on creative storytelling as patient advocacy. Learn more about Race to Tokyo at racetotokyo.com and visit fracturedatlas.org to support Travis' documentary efforts. Run Time - 47:24 Send your feedback to feedback@justtalkingpodcast.com ....
May 23, 2018•47 min
Ryan Prior returns to the podcast to discuss tactics for maintaining sanity amidst all the breaking news while working at CNN, and the ongoing effort to raise awareness and increase research funding for ME/CFS. We also discuss the recent #MillionsMissing campaign and the impact that can be made by a worldwide network of patients and patient advocates. Learn more about #MissingMillions at missingmillions.org and from this #MillionsMissing announcement video on YouTube . Learn more about ME/CFS fr...
May 15, 2018•39 min
This week, Cherise Shockley returns to the podcast to discuss home office layouts, pursuing a degree in social media (only it's not called social media), the diabetes technology space race, and how we might address the lack of representation of women of color in the diabetes community. Follow Cherise on Twitter @SweeterCherise . Follow #dsma on Twitter and @WOCdiabetes on Instagram . Run Time - 41:50 Send your feedback to feedback@justtalkingpodcast.com ....
May 09, 2018•42 min
Adam Hayden joins me this week to share his glioblastoma diagnosis and adventures in patient advocacy. We also discuss the social impact of John McCain's diagnosis, the value of sharing patient stories in a clinical setting, the similarities between impostor syndrome and survivor's guilt, and Adam's work at Our Brain Bank. Follow Adam on Twitter @AdamHayden. Learn more about Adam's work at glioblastology.com and ourbrainbank.com . Adam's open letter to John McCain can be read on Stat News . Run ...
May 01, 2018•43 min
This week I'm joined by Katie McCurdy to talk about her work as a user experience designer focusing on healthcare solutions. In particular, we focus on storytelling as a means to inform conversations between patients and providers, Katie's Health History Timeline, and the potential of her new venture - Pictal Health. Learn more about Katie's work at katiemccurdy.com and pictalhealth.com . Run Time - 43:59 Send your feedback to feedback@justtalkingpodcast.com ....
Apr 24, 2018•44 min
Still in the midst of unpacking and settling into our home, and in an effort that could resemble something akin to brand synergy, I'm sharing a recent episode of one of my other podcasts, "Mark All That Apply". Catch up on past episodes of "Mark All That Apply" at markallthatapply.com . Run Time - 56:37 Send your feedback to feedback@justtalkingpodcast.com .
Apr 17, 2018•57 min
In the middle of our whirlwind adventure of unpacking in our new house, Dayle and I took a few minutes to recap everything that led up to becoming homeowners. It's still unbelievable we've made it to this point, and we can't wait to experience this exciting new chapter of our lives. Head over to my Instagram page if you want to check out some shots during the build. Run Time - 42:38 Send your feedback to feedback@justtalkingpodcast.com ....
Apr 11, 2018•43 min
So, we're moving into our house, and this week's podcast is sort of a wash, which you hopefully understand. This is me saying "Hi", and a promise that next week we'll recap everything that lead up to the move. Now, back to unpacking! Run Time - 1:18 Send your feedback to feedback@justtalkingpodcast.com .
Apr 03, 2018•1 min
This week I'm joined by Courtney Duckworth for a conversation about her diabetes diagnosis, creating a scholarship for people with diabetes, turning marathon training into an opportunity to write a book and actively engage in diabetes advocacy, and being a cheerleader for the Washington Capitals. "The Marathon We Live: Training for a Personal Best in Life with Type 1 Diabetes" is available at everystepcountst1d.org . Run Time - 41:52 Send your feedback to feedback@justtalkingpodcast.com ....
Mar 27, 2018•42 min
Tabatha Wharton joins me for a conversation about her new book, "Manic Pixie Suicide Mistress". We cover the original inspiration for her book, her process for curating and editing her work, and unique challenges of self promotion. We also discuss her graduate school adventures and a possible PhD in Social Media. "Manic Pixie Suicide Mistress" is available at tabathawharton.com . You can use the promo code "podcast" to get 34% off any order. Run Time - 1:05:02 Send your feedback to feedback@just...
Mar 20, 2018•1 hr
Danny O'Dwyer joins me for a conversation about the origins behind, reception to, and welcome challenges of his crowd-funded video game documentary series, Noclip. We also talk about Danny's process for preparing for a new shoot, his commitment to transparency, and the weird social dynamics of working from home. We end our chat with a brief discussion about the upcoming Formula 1 season, and appreciate how a podcast about speedy race cars can convert idle listeners into passionate racing fans. F...
Mar 13, 2018•1 hr 5 min
This week, Emily Bradley and I catch up on her Physician's Assistant degree pursuit, her role at Science 37, and discuss the complex nature of disability and disclosure, especially in medical education. What can we learn from each other, how might we improve empathy among able-bodied groups and individuals, what does it mean to self-censor your online persona and hide aspects of your patient experience. While we weren't shy about asking a lot of tough questions, the answers are harder to come by...
Mar 06, 2018•40 min
Patrick McAllister joins me this week for a conversation about skiing in Vermont, being diagnosed with type 1 diabetes well before classic symptoms emerged, relying on an in-person support system for emotional support, and his new book "Highs & Lows of Type 1 Diabetes: The Ultimate Guide for Teens and Young Adults". Patrick's book, "Highs & Lows of Type 1 Diabetes: The Ultimate Guide for Teens and Young Adults" is available on Amazon in Kindle and Paperback . Visit sparearose.org to make...
Feb 27, 2018•39 min
This week I'm joined by Liz Sacco, President and Founder of Diabetic Dabs for a conversation about her past life as a financial advisor, her son's diabetes diagnosis, identifying and pursuing a business opportunity in Diabetic Dabs, and the behind the scenes effort required to make her business a success. There's also a brief bit about New England sports, as one does with a guest in the greater Boston area. Learn more about Diabetic Dabs at diabeticdabs.com . Visit sparearose.org to make a donat...
Feb 20, 2018•43 min
Celebrating Diabetes Podcast Week 2018 and the launch of the Spare a Rose campaign, I'm joined by Renza Scibilia for a conversation about patient communities crossing borders, and oceans. We cover Renza's diabetes diagnosis, the value of peer support locally and abroad, how Australia's healthcare system matches up with the rest of the world, and the importance of language and word choice when we talk about the patient experience. Keep up with Renza on Twitter @RenzaS and diabetogenic.wordpress.c...
Feb 13, 2018•36 min
Lauren Bongiorno joins me for a conversation about her diabetes diagnosis, discovering a passion for teaching yoga, cultivating and maintaining a genuine following on Instagram, and tapping into her entrepreneurial spirit to become a health coach culminating in her recently successful KickStarter project, the Diabetic Health Journal. Keep up with Lauren on Instagram @lauren_bongiorno and laurenbongiorno.com . Run Time - 43:48 Send your feedback to feedback@justtalkingpodcast.com ....
Feb 07, 2018•44 min
This week I'm joined by Molly Schreiber for a chat about traffic in the Washington, D.C. area, living with diabetes, managing diabetes on top of a rheumatoid arthritis diagnosis, comparing and contrasting experiences in different patient communities, and the upcoming HealtheVoices conference. Keep up with Molly on Instagram @mollyschreiber and atjax.net . Learn more about the 2018 HealtheVoices conference by visiting healthevoices . Run Time - 50:02 Send your feedback to feedback@justtalkingpodc...
Jan 30, 2018•50 min
Allison Nimlos returns to the podcast for a quick catch up on the last eight years of her life including getting married, moving from New York to Minneapolis, and having a baby. Our conversation focuses on the intense diabetes management required for a healthy pregnancy and later on her new career as a therapist and the importance of psychosocial support for people living with a chronic illness. Keep up with the cute baby pictures on Instagram @amnimlos and feel free to contact Allison at amniml...
Jan 23, 2018•55 min
Dr. Victor Montori joins me this week to chat about growing up in Peru, defining his medical career at Mayo Clinic's Knowledge and Encounter Research Center, the importance and value of love in conversations with patients, writing Why We Revolt: A patient revolution for careful and kind care , and the mission behind The Patient Revolution. Learn more about The Patient Revolution by visiting patientrevolution.org and reading Why We Revolt: A patient revolution for careful and kind care . Run Time...
Jan 16, 2018•39 min
This week I'm joined by Rebecca Hogue for a chat about her breast cancer diagnosis and how her blog helped connect her to her family and other patients around the world. Then our conversation shifts to the importance of understanding and improving health literacy, empowering others to share their stories, and Rebecca's PhD dissertation. Keep up with everything Rebecca is working on by following her on Twitter at @rjhogue and reading bcbecky.com , epatienthealthliteracy.org , and livingpathograph...
Jan 09, 2018•52 min
