Episode 175 - Afternoon Napper
Feb 19, 2013•1 hr 1 min
Listen to this episode in Metacast mobile app
Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more
Episode description
I'm joined this week by Sarah, the Afternoon Napper - as she calls herself. Our conversation revolves around her life with fibromuscular dysplasia, her lengthy diagnosis story, what it means to live with a rare disease, and how she's been able to leverage social media to form a community around a disease that impacts a small number of people in the country. We also talk about Sarah's dual identities (online) and how these identities are merging. Finally, we discuss Rare Disease Day and the importance of awareness before action. Enjoy.
Follow Sarah on Twitter at @AfternoonNapperand keep up with her many endeavors at:
Run Time - 1:01:12
Send your feedback to feedback@justtalkingpodcast.com.
For the best experience, listen in Metacast app for iOS or Android