Key terms and definitions In porphyria
May 26, 2023•18 min
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Episode description
Professor Sverre Sandberg joins the podcast to discuss recent work looking to establish key terms and definitions in the acute porphyrias, and explains how this will ultimately help bring forward treatment and research.
EPNet website: http://porphyria.eu
Key Terms and Definitions in Acute Porphyrias: Results of an International Delphi Consensus Led by the European Porphyria Network
Penelope E. Stein, et al
https://doi.org/10.1002/jimd.12612
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