Sickle cell disease

A transcript is available online

Sickle cell disease is an inherited disorder of the blood protein hemoglobin. It has multiple ways to impact the health of someone with the disease ��� with a hallmark symptom being excruciating chronic pain. The vast majority of people with sickle cell trait and sickle cell disease are Black. Until relatively recently, there has been only one drug to treat the disease.

On this week's program, host Se��n Collins talks with Dr. Titilope Fasipe, co-director of the Sickle Cell and Thalassemia Program at Texas Children's Cancer and Hematology Center in Houston about advances in both the treatment of sickle cell disease and progress toward a cure.

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Titilope Fasipe, M.D., Ph.D.

Co-Director

Sickle Cell & Thalassemia Program

Texas Children's Cancer & Hematology Center

Assistant Professor

Pediatrics & Hematology/Oncology

Baylor College of Medicine

Houston, Texas

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To produce this episode, we collected stories from people living with sickle cell disease. These interviews are excerpted in this podcast episode and we invite you to listen to more of the conversations by following the links below.��

Andre Marcel Harris speaks with his sister Alexis Harris

Sijaama Branch talking with producer Scott Acord

Heather Avant in conversation with her cousin Dr. Bria Davis ����

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To learn more:

A full list of resources is available on our website

Sickle Cell & Thalasemmia Program �� (Texas Children's)

Sickle Cell Disease Coalition

A ���Narcotics Contract��� for a Patient With Sickle Cell Disease ����Pediatrics / (the "care-seeking" article)��

Building access to care in adult sickle cell disease ��Blood Advances

Cure Sickle Cell Initiative ��NIH

Sickle Cell Gene Therapy Education Project �� NIH

Addressing SCD: A Strategic Plan and Blueprint for Action �� NASEM

A Review of Sickle Cell Disease (and Reply) JAMA

Hospital Use and Mortality in Transition-Aged Patients With Sickle Cell Disease ��Hospital Pediatrics

Still seeking balance in opioid management for acute sickle cell disease pain ����Pediatric Blood & Cancer

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