Hacking Hypermobility - podcast cover

Hacking Hypermobility

Two Bendy Mommaswww.hackinghypermobility.com
Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.
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Episodes

1.10 Year in Review 2022 - Zebra Edition

NOTE: Hacking Hypermobility UNMASKED - We opted to leave all of our stumbling, umms, and off-topic squirrelling in this episode. As a result, the episode is 3 hours long! This episode is also the season one finale. The Bendy Mommas are going to enjoy a hiatus for a little bit before we buckle down and solidify plans for season two. Keep up with us on our socials in the mean time! ----- The Bendy Mommas close out the season with a recap of the Zebra news from 2022. Luna and Shelli’s 2022 wrap-up ...

Feb 02, 20233 hr 4 minSeason 1Ep. 10

1.09 Let's have a little fun

Join the Two Bendy Mommas as they answer some fun questions. Shelli's daughter joins in the fun to play MC.

Jan 29, 202328 min

1.08 A Conversation with a Late Diagnosed Woman, Interview 2

The Bendy Mommas continue their conversation on late diagnosis. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms/23154-neurodivergent Csecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Themelis K, Mathias CJ, Critchley HD, Eccles JA. Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain. Front Psychiatry. 2022 Feb 2;12:786916. doi: 10.3389/fpsyt.2021.786916. ...

Jan 23, 20231 hr 7 minSeason 1Ep. 8

1.07 A Conversation with a Late Diagnosed Woman, Interview 1

A Conversation with a Late Diagnosed Woman, Interview 1 Summary: Join us for a more casual conversation to get to know your hosts of the Hacking Hypermobility Podcast. Luna and Shelli sit down to talk about their own experiences with neurodivergence. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms/23154-neurodivergent Csecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Th...

Jan 02, 20231 hr 17 minSeason 1Ep. 7

1.04 Hypermobility Assessment: All About Beighton

Show Notes Episode 1.04 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 1: The Beighton Score Resources mentioned in this episode are listed and linked here: https://www.hackinghypermobility.com/post/show-notes-episode-1-04

Oct 10, 20221 hr 21 minSeason 1Ep. 4

1.03 Barriers to Diagnosis and Care

In this episode we discuss the barriers you may come across during your diagnostic journey and understanding the cause of your hypermobility disorder. Some of these barriers are more internal, while others are external to you, therefore making them even more difficult to address. Part 1 - Luna and Shelli discuss the internal and external barriers Parts 2 & 3 - Luna and Shelli share the accommodations and hacks they use to make sure they are practicing regular self-care.

Sep 20, 20222 hr 32 minSeason 1Ep. 3

1.02 Overview of the Diagnostic Process

In this episode we discuss preparing to see a doctor for an evaluation of hypermobility and the Ehlers-Danlos Syndromes in general. Hop over to our blog to see the full list of resources, books, articles, and tools mentioned in this episode and to find your homework! https://www.hackinghypermobility.com/post/show-notes-episode-1-02...

Aug 19, 20221 hr 50 minSeason 1Ep. 2

1.01 Introducing the Hacking Hypermobility Podcast

Have you ever been told you were hypermobile, double jointed, or super bendy? Were you singled out for the cool party tricks you could do with your fingers, shoulders, and elbows? Show Notes Episode 1.01 National Academies of Sciences, Engineering, and Medicine. 2022. Selected Heritable Disorders of Connective Tissue and Disability. Washington, DC: The National Academies Press. https://doi.org/10.17226/2643 https://nap.nationalacademies.org/catalog/26431/selected-heritable-disorders-of-connectiv...

Aug 01, 20221 hr 19 minSeason 1Ep. 1
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