Meet Nathaniel from St. Louis, Missouri. A Happy and resilient personality who reminds us of how many ways people can have a voice beyond audible speech, and how important it is for everyone to have that right. At Go Shout Love we do amazing things for amazing families with kids on rare medical journeys. Each month we shout love for families through the sale of creative apparel inspired by kiddos like Nathaniel. Every purchase in March will be used to help purchase a bike trailer to allow Nathan...
Mar 08, 2022•1 hr 10 min
Josh and Jessica talk with Stephanie and Rodney, the parents of Sofia, a beautiful 6 year old who has Leukodystrophy and Epilepsy, and is our feature kiddo for this month. At Go Shout Love we do amazing things for amazing families with kids on rare medical journeys. Each month we shout love for families through the sale of creative apparel inspired by the kiddos. This month’s “Known & Loved” t-shirt design is inspired by Sofia, whose loving, warm, and silly personality allowed her to connect...
Feb 08, 2022•53 min
At Go Shout Love we do amazing things for these amazing families with kids on rare medical journeys then check out this month’s “Same Storm, Different Boat” design that is inspired by Maddy and Mady. Separated by only 80 miles, these sweet girls are navigating their own unique medical journeys, but have many experiences and battles they share with each other and other kiddos on rare medical journeys. Every purchase in January will be used to help cover the costs of medical and mobility equipment...
Jan 18, 2022•1 hr 1 min
Go Shout Love is doing amazing things for amazing families with kids on rare medical journeys then check out this month’s “Same Storm, Different Boat” design that is inspired by Maddy and Mady. Separated by only 80 miles, these sweet girls are navigating their own unique medical journeys, but have many experiences and battles they share with each other and other kiddos on rare medical journeys. This episode surrounds Maddy M from Wamego, KS. We talk with her parents Megan and Joe about their jou...
Jan 04, 2022•1 hr 4 min
Welcome back everyone today we are continuing our conversation with Cassie and Taylor the parents to Jensen lee, an 8 year old boy from Ava Missouri who has leukemia. By the time we are posting this episode they will have only known about the diagnosis for about 40 days, so this family is still in the newness of it all with a long journey ahead. This is part 2, so if you haven’t listened to part one, pause this and head back to that. Today we get to hear about how Jensen lee himself is doing, ho...
Nov 09, 2021•24 min
Get ready to shout love for Jensen Lee! Jensen is a kind, compassionate, and loving 8-year-old boy who loves dirt bikes, animals, and baseball. He lives in Missouri with his parents, Cassie and Taylor, his older brother, Jack, and younger sister, Charlie. This month’s “Brave” t-shirt design is inspired by Jensen and his journey with B-Cell Acute Lymphoblastic Leukemia. Every purchase in November will be used to help cover the costs of travel and housing expenses for Jensen Lee’s treatments. We i...
Nov 02, 2021•34 min
This is part 2 of the conversation surrounding our feature kiddo Gabriel. We are talking with Stephanie and Scott, Gabriels parents. If you haven’t listened to part 1 yet, pause this episode and go back. There is a lot of context surrounding Gabriel and his background that will play a lot into this episode as well. Today’s episode includes a lot of what is important for this family, including experiences. Living life to its fullest. We really didn’t touch on the medical side in part 1, but this ...
Oct 12, 2021•27 min
This month we are talking to Scott and Stephanie who are the parents to the always smiling, music loving 5 year old Gabriel. Gabriel has been diagnosed with cerebral palsy and has a number of challenges and therapies that come with that diagnosis. Stephanie and Scot are going to fill us in on all of that. But what they also talk about is how Gabriel initially came into their lives and how the dynamic of their family is forever changed by this incredible little boy’s journey through foster placem...
Oct 05, 2021•31 min
Cece is our feature kiddo for the month of September 2021 and she has Pitt Hopkins Syndrome. This diagnosis comes with its challenges and that is how this episode starts off, with some of the difficulties and how this family is overcoming some of those. But the journey doesn’t begin and end with challenges and difficulties, those are elements involved. But other elements that are also very present are the joys…the positives…the love. Thats what this episode is, it is a great insight to the life ...
Sep 21, 2021•28 min
Welcome to September 2021 as we feature a new family and a new kiddo. This month we are introducing you to Cecily…or Cece as her family affectionally calls her. Cece is a joyful and social 4 yr old who has been diagnosed with Pitt Hopkins syndrome. Today we are talking with Louie and Lizzy who are Cece’s parents. There is a lot covered in this first episode, including getting to know the family through two great personalities in Louis and Lizzy. They talk about the journey of discovering the dia...
Sep 07, 2021•38 min
This is part 2 of the conversation with Aaron and Jen, the parents to Jesus our feature kiddo for the month of August 2021 We ended the last episode talking about the unique combination and relationship that exists with Jesus and his parents. If you haven’t listened to that episode, I would stop this now and go back to part 1 first. It provides a lot of context for what you will hear today. We cover so much with this episode, from the impact Jesus has on this family, the daily life and challenge...
Aug 10, 2021•35 min
“He 110% loves to be held all day long. It’s the sweetest thing. We will lay him down, and his eyes pop open and he starts to look around. Once we pick him up, he’ll start laughing, because he knows. He continues to change the longer he’s been in our home, and I can only pray that as he gets older, he continues to show his preferences about stuff because that was something that was never expected of him. His opinion matters, it matters to all of us. I make sure that it matters to anyone we come ...
Aug 03, 2021•50 min
This is part 2 of the conversation with Kati and Derek, the parents to Haylee who is our feature kiddo for the month of July. If you haven’t listened to part 1 I recommend pausing this and going back one, it provides a lot of context to what we will talk in this episode. That last one was about their medical journey and Haylee’s personality. Today we are going to go further into the daily challenges surrounding her diagnosis which includes sleeping at night. Every purchase in July on our website...
Jul 13, 2021•29 min
It is a new month and that means a new feature family. Today we are talking with Kati and Derek, the parents to Haylee, a sassy, smart and determined 3 year old girl from Overland Park, KS Haylee has been diagnosed with RYR-1 or also known as Central Core disease. Derek and Kati tell you more about Haylee’s medical journey, her diagnosis and what this means for her daily life. There is a lot there to unpack and some details that are unique to Haylee. This is part 1 of two episodes of the convers...
Jul 06, 2021•32 min
This episode is Part 2 of the conversation with Aaron and Andrea, the parents to Jaelyn and Reagan who are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. This episode touches on key topics that exist with many families we feature like finding the joy in the small moments and how those can come through the uniquely and constantly present challenges with daily activities and spo...
Jun 17, 2021•33 min
Jaelyn and Reagan are sisters from Iowa living joyfully with undiagnosed conditions. Jaelyn is a patriotic, silly, and strong eleven-year-old who enjoys music, school, and the color purple. Reagan is a determined, silly, and shy three-year-old who likes playing outside, books, and baby dolls. Jaelyn and Reagan’s journey encourages us to not worry about yesterday or tomorrow, but to stay present in today. They both love playing with their sister five-year-old sister, Shelby. Today's episode cente...
Jun 08, 2021•39 min
This is part 2 of the conversation with Kelly who is the mother to Avery. Avery is our feature kiddo for the month of May 2021. I would recommend listening to part 1 if you haven’t yet. That episode gives a lot of context for Avery’s medical journey and the background for Kelly and her husband Mark. We ended the last episode talking about conversations, interactions and phrases that cause some separation between families with kinds on rare medical journeys and people who haven’t walked that path...
May 11, 2021•23 min
New month and a new kiddo. This month we are featuring a young boy named Avery. We are talking with his mother Kelly about the medical journey for Avery and what that has meant for their family including Avery's twin sister Emma. This is part one of the conversation with Kelly and one that centers around a very rare diagnosis along with how we can learn from other's reactions and words. Both Mark and Kelly have military background in the Navy. We recorded this at a time when Mark couldn't partic...
May 04, 2021•38 min
This part 2 episode is all about Mayah’s impact on her school friends, on her family and all who get to meet her. It is a shorter episode, but it does not ease up on quality conversation about an incredible girl and the lessons she is teaching those around her. Connect with Ryan and Angie https://www.facebook.com/MiracleMayah Connect with Go Shout Love: https://goshout.love https://www.instagram.com/goshoutlove/ https://www.facebook.com/goshoutlove/...
Apr 13, 2021•18 min
Mayah is a happy, captivating and inspiring five year old from Maria Stein, Ohio. She loves her family, school and watching her favorite TV shows. Her beautiful smile and positive attitude bring joy wherever she goes! This episode focuses on Angie and Ryan's medical journey with Mayah and touches on her personality and some insight into how Mayah is impacting the world one person at a time. Connect with Ryan and Angie https://www.facebook.com/MiracleMayah Connect with Go Shout Love: https://gosh...
Apr 06, 2021•51 min
This is part two of the conversation with bob and Lauren the parents to Leo who is our feature kiddo for the month of march. A lot of good content here that is applicable for anyone listening. Bob and Lauren are incredibly easy to listen to and have a lot of poignant things to say about their son and life in general. this episode talks a lot about inclusivity and society. we talk about how to support others during tough times. This is a shorter episode, but there is so much packed in. Connect wi...
Mar 16, 2021•18 min
Today we are talking with Bob and Lauren, the parents to Leo. Leo is a loving, sweet, and ornery five year old who lives on a ranch in Oklahoma with his family. He enjoys swimming, being outside and riding horses. Leo encourages us to look for the positive in each day and to enjoy the ride. Leo has been diagnosed with Aicardi-Goutieres Syndrome. This episode dives into his diagnosis and the journey of discovering what it means for this family. Connect with Bob and Lauren https://www.instagram.co...
Mar 09, 2021•39 min
Welcome back shouters today we are continuing our talk with Byron and Kari the parents to little feisty ivy, our feature kiddo for February 2021. She has diastrophic dysplasia and that comes with its set of challenges that are unique, especially when the best doctors to help are cross the country. This is part 2 of this conversation, if you have not listened to part 1, press pause and go back and do that. Part 1 has a lot of context about ivy, her family and her diagnosis that will help set the ...
Feb 09, 2021•24 min
This is part 1 of two conversations with Kari and Byron, the parents to two-year old feisty and determined Ivy who has Diastrophic Dysplasia. This episode centers around the little Ivy’s medical journey as well as her journey of being adopted into her wonderful family. Join us in shouting love for Ivy for the month of February. Please follow us on Facebook and on instagram, just search Go Shout Love…you will find us and you will also find more connection to these families as well as previous fam...
Feb 02, 2021•42 min
This episode is part 2 of a conversation with Daidra and Eric who are the parents to this month’s feature kiddos…wonderful boys Eli and Zeke. They also have another son Isaac and you can hear all about these boys in part 1. I would recommend listening to that first if you haven’t just for a little context coming into this episode. In part one we heard about Eli and Zeke’s diagnosis and some of the challenges that surround that. This episode takes a step back and looks at the broader picture of p...
Jan 12, 2021•24 min
Today we have with us Daidra and Eric who have three boys, two of which are 11 year old twins and one is a not even a year old yet. Two of these three boys are our feature kiddos for January. One incredible feature about their story is the relationship between each of the boys with one another. Eli has Cerebral palsy and is also one of the twin brothers. Isaac is the other twin and doesn’t carry a diagnosis. Fast forward a number of years and along comes baby zeke who has been diagnosed with Pon...
Jan 05, 2021•28 min
It is the end of 2020. Josh and Seth talk about how Go Shout Love weathered the pandemic and how we were still able to impact families. There is also some exciting news about the future of Go Shout Love and a new program as well.
Dec 08, 2020•34 min
Today we are with Andrew and Sam, the parents to Maddox and Paisley, the kiddos we are featuring for the month of November. This is part 2 of this conversation and if you have not listened to part 1, I would recommend pausing this and listening to that for context and to get to know the family as well. This episode expands on the two very different diagnoses for these siblings along with other topics including…how as parents, as couples and as families they attempt to handle the “unknowns” that ...
Nov 10, 2020•31 min
Today’s conversation is with Andrew and Sam, the parents to Maddox who is 2 years old and Paisley who is 7, are our feature kiddos for November. They also have 4 year old Juliet, which means they have a lot on their hands with some amazing kids and their personalities. Maddox is diagnosed with Spina Bifida, hydrocephalus along with a few other conditions. Paisley is diagnosed with Cerebral AVM (arteriovenous malformation) in the basal ganglia region of her brain. This family has an incredible jo...
Nov 03, 2020•43 min
This is the second of two episodes with Robyn and Glen, the parents to Luna who is our featured kiddo for the month of October. If you haven’t listened to the first one I would recommend it before jumping into this one. To provide context, Robyn and Glen have been fighting and advocating for their daughter since shortly after she was born. There have been many hectic moments and many stressful and frustrating conversations that have left them feeling stranded with very few answers on how to help...
Oct 13, 2020•24 min
