Episode 8: The Black Genome Project

In this episode, Chelsey Carter, PhD, and Brett Maricque, PhD, founders of the Black Genome Project (https://www.blackgenomeproject.org/) talk about their work to understand how Black communities value their genomes and genetic data, how genetic research is impacting Black communities in St. Louis, and whether genomic sequencing is valuable for everyone.

TOPICS

• Introduction to the Chelsey Carter, PhD; Brett Marique, PhD, and the Black Genome Project

• Discussion of how the Black Genome Project is collaborating with the Black community in St. Louis, its local nature, and how the team is collecting data

• Discussion of how the Black Genome Project is using storytelling, focus groups, structured surveys and why they chose this approach

• What has been the most powerful part of what have you heard from the Black community in St. Louis?

• How do you approach people as an expert in their own lived experience within healthcare and genetics?

• How can the Black community exercise agency over their genetic information?

• Discussion about understandings about nature v. nature and genetic literacy

• How do you talk about ideas like rejecting race as biology, race as a social construct, racism underlying health disparities and the need to diversify genomic data sets?

• Where the Black Genome Project is headed in the future