S4E5: Reflection

In our final episode of the season, we discuss the counselling issues and interventions raised in episode 4: insurance, and have guest input from insurance expert Dr Jane Tiller.

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References mentioned in our discussion:

• Centre for Genetics Education fact sheet: Life Insurance Products and Genetic Testing in Australia. https://www.genetics.edu.au/SitePages/Life-insurance-products-and-genetic-testing-in-Australia.aspx  

• Clarke & Wallgren-Pettersson (2019). Ethics in genetic counselling. Journal of  Community Genetics https://doi.org/10.1007/s12687-018-0371-7 

• The DNA Screen study: https://dnascreen.monash.edu/index.html  

• Human Genetics Society of Australasia Code of Ethics: https://www.hgsa.org.au/common/Uploaded%20files/pdfs/policies,%20position%20statements%20and%20guidelines/genetic%20counselling/Code%20of%20Ethics%20for%20GC.pdf [original]; https://hgsa.org.au/common/Uploaded%20files/pdfs/policies,%20position%20statements%20and%20guidelines/members%20only%20policies/HGSA%20Code%20of%20Ethics-%20Guideline.pdf [updated]

• Keenan, et al., (2013). How Do Partners Find out About the Risk of Huntington's Disease in Couple Relationships? Journal of Genetic Counseling https://doi.org/10.1007/s10897-012-9562-2 

• MacLeod et al., (2013). Editorial Committee and Working Group ‘Genetic Testing Counselling’ of the European Huntington Disease Network. Recommendations for the predictive genetic test in Huntington's disease. Clinical Genetics https://doi.org/10.1111/j.1399-0004.2012.01900.x 

• Reeder, et al.,(2017). Characterizing Clinical Genetic Counselors’ Countertransference Experiences: an Exploratory Study. Journal of Genetic Counseling https://doi.org/10.1007/s10897-016-0063-6

• Tiller, et al., (2023). Final Stakeholder Report of the Australian Genetics and Life Insurance Moratorium: Monitoring the Effectiveness and Response (A-GLIMMER) Project. Monash University. https://doi.org/10.26180/23564538.v1 

• Updates regarding the ban on the use of adverse genetic testing results on life insurance: https://treasury.gov.au/consultation/c2025-626785 ; https://ministers.treasury.gov.au/ministers/stephen-jones-2022/media-releases/total-ban-use-adverse-genetic-testing-results-life