#48 - Julien: Aspartylglucosaminuria, life as an EMT
Dec 10, 2024•1 hr 17 min•Season 2Ep. 23
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Episode description
Aspartylglucosaminuria (AGU), is a rare and fatal disease that currently has no treatment. Julian shares the experience of Julia Taravella, and her children Daniel and Alexander.
Julian was an EMT, and has first hand experience with the American medical system. To support this podcast please consider donating to the cause:
https://www.raretrait.com/home_1
https://www.amazon.com.br/Nazira-Purrpose-like-other-English-ebook/dp/B0DNHX7BJQ
Blog: https://blog.ethers.club/
Social: https://x.com/0x_Sero
Github: https://github.com/Seroxdesign
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