Deciding with Children 6: When children with chronic disease know more than you (Type 1 Diabetes)

We explore ways to involve children and young people when managing their chronic condition, using type 1 diabetes as an example. How do the small decisions that respect the child’s preferences and values build towards an independent decision-maker? Given the level of responsibility that parents feel for the outcomes of their child’s disease control, what role does a parent have in deciding with children? We also consider the clinician as holder of special knowledge about diabetes, and also as coach for the child and the parents to develop the independent decision-maker. Host: Prof John Massie. Guests: Dr Michele O’Connell, Endocrinologist at RCH; and Prof Lynn Gillam, Children's Bioethics Centre, RCH.