José Fajardo on Participating in a Clinical Trial

There are currently no effective treatments available for ALS. Because of this many people living with ALS turn to Clinical Trials, both to get a chance to receive a potentially beneficial treatment and to help push forward the scientific effort to end the ALS. It’s not an easy commitment –participants may have to travel to faraway sites to receive treatment, undergo uncomfortable or even painful procedures, and face the chance that, in many trials, they may be randomized into the placebo group.

José Fajardo, a radio producer and executive living in Hawaii who was diagnosed with ALS in 2019, elected to take on some remarkable challenges in order to join a clinical trial, including traveling for regular site visits all the way from Hawaii to Texas.

Today, he joins us on Endpoints to talk about his story, how he decided a clinical trial was right for him, and what his experience was like.

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