Endpoints

The Endpoints Podcast features guests from the ALS community, including people living with ALS, researchers, advocates and fundraisers. Each episode cuts to the chase with short, digestible conversations about the latest research at ALS TDI and the most closely watched ALS clinical trials as well as stories from people living with ALS with their thoughts on research, healthcare and their journey with ALS.

The Endpoints Podcast is hosted by the ALS Therapy Development Institute (ALS TDI) the world's foremost drug discovery lab focused solely on ALS. ALS TDI is a non-profit biotech with one mission. End ALS.

To access all episodes of the Endpoints Podcast, visit als.net/endpoints.

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Episodes

NurOwn and the Hope for Stem Cells in ALS?

On this episode of the Endpoints, Dr. Steve Perrin, CEO at ALS TDI answers questions about one of the most talked about clinical trials in ALS at the moment, Brainstorm Cell Therapeutics’ NurOwn, a proposed stem-cell-based treatment. The therapy focuses on the cellular support system around a person with ALS’ motor neurons. It aims to slow disease progression by replacing the damaged system with an enhanced one. To listen to more episodes of the Endpoints Podcast, click here . Support the show: ...

Oct 15, 2019•13 min•Season 1Ep. 14

Tamara Hillard: Anticipating Needs as an ALS Caregiver

In this episode of the Endpoints , Tamara Hilliard, from Fort Worth, Texas, talks about the challenges of caring for her husband, Jim, who’s living with ALS, and his anticipated needs ahead of time. Tamara also shares her story about the pitfalls of traveling and the preparation required to succeed. Tamara and Jim have a great attitude relying on their circle of support and the great resources the community provides. You can access all previous episodes of the Endpoints Podcast, by visiting www....

Oct 15, 2019•7 min•Season 1Ep. 18

Jeff Roosa: Uniting First Responders to End ALS

In this episode of the Endpoints, Jeff Roosa, Lee, MA Chief of Police, joins Gabrielle Bellitti, Outreach and Engagement Specialist at ALS TDI, to talk about living with ALS and uniting first responders to raise money for ALS research through Arrest & Extinguish ALS . You can access all episodes of the Endpoints Podcast for free by visiting www.als.net/endpoints and registering. Support the show: https://www.als.net/donate/ See omnystudio.com/listener for privacy information....

Sep 18, 2019•20 min•Season 1Ep. 15

What to know about CuATSM clinical trials

In this episode, Dr. Fernando Vieira, CSO at the ALS Therapy Development Institute (ALS TDI), joins us to discuss Copper ATSM (CuATSM)clinical trials. CuATSM is a small molecule drug sponsored by the company Collaborative MedicinalDevelopment (CMD). They recently completed enrollment of a small, Phase 1 clinical trial in Australia. You can access all episodes of the Endpoints Podcast for free by visiting www.als.net/endpoints and registering. Support the show: https://www.als.net/donate/ See omn...

Sep 18, 2019•11 min•Season 1Ep. 16

What Do We Know About C9ORF72?

In this episode of the Endpoints, Dr. Fernando Vieira explains what we know so far about C9ORF72, a gene which has been implicated in up to 40% of cases of familial ALS. C9ORF72was discovered to be a cause of ALS 8 years ago but there is still a lot for researchers to learn about its unique characteristics. Dr. Vieira talks about some of the hurdles to overcome and what researchers are doing right now to try to address this mutation. You can access all episodes of the Endpoints Podcast for free ...

Sep 18, 2019•12 min•Season 1Ep. 17

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