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Episode description
Michael Hund is the CEO of EB Research Partnership (EBRP), a trailblazing medical research organization focused on curing Epidermolysis Bullosa (EB), a life-threatening genetic skin disease. Under his leadership EBRP has accelerated the landscape from 2 to over 40 clinical trials and via their award winning venture philanthropy methodology funded the first FDA approved treatment for EB in 2023, the first ever topical gene therapy. In Michael’s tenure, EBRP’s innovative business model has garnered recognition from Harvard Business School, Yale University, MIT, Stanford Social Innovation Review, Rolling Stone, and Forbes. With a background at the Multiple Myeloma Research Foundation and Paul Newman’s Hole in the Wall Gang Fund, he has dedicated his career to transforming healthcare.
Michael received his Master’s in Business Administration (MBA) from Yale University, CORe credential from Harvard Business School, and an undergraduate degree in Philosophy from the University of Kansas. He is the recipient of the MIT Solve Horizon Innovation Award, Social Innovations Journal Leadership Award, Top 100 Magazine Innovators, and Authority Magazine’s Social Innovators. He lives in Connecticut with his wife Sarah and four daughters.
Transcript
This is iHeartMedia's CEOs you should know, sponsored by Comcast Business Powering Possibilities. You imagine being a parent. You've
never heard the words epidermalysis belosa before. Our big, bold, audacious goal
at EBRP is to cure EB by the end of this decade and pioneer a
new innovative business model that can apply to the four hundred million people on this
planet with a rare disease. You know, it's hard to compare, but it's
particularly one of the more devastating disease
I've worked with. Skin is the
largest organ in the body, and for those born with EB, the skin
just simply doesn't work. The good news is eb's a monogenetic disease, which
means it's caused by one genetic mutation that we know. So that gives us
hope, courage, optimism to charge forward with endless urgency to reach that target
of a cure by twenty thirty. So
we believe we have a model of
business that's worked. CEOs you should know its powered by iHeartMedia and sponsored by
Comcast Business Powering Possibilities all the speed your business needs. With Comcast Business,
it's not just possible it's happening
