Cancer Convos: Survivorship. Advocacy. Policy - podcast cover

Cancer Convos: Survivorship. Advocacy. Policy

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Education

In Cancer Convos, leaders of the National Coalition for Cancer Survivorship talk with health care experts, providers, cancer survivors, caregivers, and advocates about cancer survivorship, advocacy, and policy efforts to improve cancer care. Shelley Fuld Nasso, NPP, is the CEO of this advocacy group with a strong mission. Formerly leading public policy with the Susan G. Komen Foundation, Shelley found her calling to advocacy as a dear friend lost his battle to cancer at only 43 years old. Now, she is bringing survivors and healthcare providers together with a new podcast. Lindsey Houff MPP is the Senior Policy Manager for NCCS. A dedicated advocate and graduate of Virginia Tech, Lindsey lost her father at a young age to Melanoma. The NCCS team is working to build a brighter future for those who have been affected by cancer. As NCCS aims to improve public policies, the advocates and survivors behind the story are inspiring and educational. Education, inspiration and connection, the keys to bringing survivors and healthcare together with a common goal; surviving cancer.

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Episodes

What legal and financial protections do cancer survivors have during a pandemic?

Monica Fawzy Bryant, Esq. and Joanna Fawzy Morales, Esq. are two cancer rights attorneys (and sisters) who saw the need to help individuals diagnosed with cancer, caregivers, advocates, and health care professionals, navigate the plethora of legal and practical issues that arise after a diagnosis -- so they founded Triage Cancer. We speak with them about how cancer survivors can receive resources and education on legal issues needed during COVID-19 and beyond.

Aug 21, 2020•31 min

Where is Veronika’s Safety Net?

Veronika, a Non-Hodgkin lymphoma cancer survivor, NCCS advocate, and Museum Educator, lead group tours of young, aspiring artists at the Children’s Museum of Pittsburg. In the cramped exhibit halls and close quarters of the indoor museum, she would feel the hugs of her young guests who greeted her as she prepared groups for interactive demonstrations. She also served as the front-line for the museum by being the first face a visitor would see. Visitors came to Veronika for answers. Since Friday ...

Jul 27, 2020•31 min

How does COVID-19 Affect People with Cancer?

In addition to the shock of a cancer diagnosis and stress of treatment, cancer patients may also be at higher risk of severe illness from COVID-19 because their cancer, or its treatment, has left them more vulnerable to complications. The National Cancer Institute (NCI) launched a long-term, nationwide study of COVID-19 in people with cancer called NCI COVID-19 in Cancer Patients Study (NCCAPS). In this podcast episode, NCCS CEO Shelley Fuld Nasso speaks with leaders of the study] about how it w...

Jul 22, 2020•49 min

Living with Stage IV Cancer During a Pandemic

In this episode, NCCS CEO Shelley Fuld Nasso talks to cancer survivorship advocates Janet Freeman-Daily, Sheila McGlown, and Kelly Shanahan about living with stage IV cancer and continuing their advocacy during a pandemic. Janet Freeman-Daily is a non-small cell lung cancer survivor, a former aerospace engineer and technical translator who writes and lectures about the cancer experience, and collaborates with with scientists and researchers. She is a moderator of the #LCSM lung cancer community ...

Jul 01, 2020•40 min

Racial and Ethnic Health Disparities During COVID-19

In this episode, Lindsay talks to Dr. Coral Olazagasti of Northwell Health in New York about how we aren’t all “in the same boat” when it comes to the COVID-19 health crisis. Dr. Olazagasti outlines cancer care disparities that exist in many majority-minority communities, and we talk about what policies might address these gaps. Read Dr. Olazagasti’s editorial in The Cancer Letter, “When disparities widen: COVID-19 in minority patients with cancer” here: https://cancerletter.com/articles/2020042...

Jun 10, 2020•22 min

Radiation Oncology Care During COVID-19

NCCS CEO Shelley Fuld Nasso talks to Leading experts from the American Society for Radiation Oncology (ASTRO) Ronald D. Ennis, MD and Louis Potters, MD about how the COVID-19 pandemic has affected radiation oncology practices. NCCS is pleased to co-present this conversation with ASTRO. The conversation focused on how cancer patients can receive life-saving radiation treatment while implementing safety and quality measures during the COVID-19 pandemic. Shelley Fuld Nasso also posed important ques...

May 21, 2020•1 hr

Health Policy and Advocacy During the COVID-19 Pandemic

In this episode, NCCS Policy Manager Lindsay Houff talks to Jamie Ledezma, an attorney who specializes in cancer rights. Jamie discusses how health policy is changing at a rapid pace, at both the state and federal levels. A cancer survivor herself, Jamie also shares what it’s like as a patient navigating the health care system during COVID-19, and gives advice for fellow patients who are looking for answers. During the conversation, Jamie mentioned a health insurance resource page from Triage Ca...

May 13, 2020•34 min

Cancer Care on the Front Lines of COVID-19 With Dr. Don Dizon

In this episode, we talk with Dr. Don Dizon, a medical oncologist who is chronicling his experience on the front lines of oncology during COVID-19 in a series for Medscape entitled COVID-19: Diary of an Oncologist. [https://www.medscape.com/index/list_13427_0] We talk with Dr. Dizon about the challenges of delivering cancer care and conducting clinical trials during a pandemic. He shares his advice for cancer patients currently in treatment, as well as for cancer survivors coping with the stress...

Apr 29, 2020•44 min

COVID-19 and Cancer: Managing Stress, Anxiety, and Grief During Uncertain Times

Listen in to Dr. Imani Price, licensed Psychologist, cognitive behavior therapist and breast cancer awareness advocate facilitate a panel discussion on managing stress in these uncertain times. Dr price uses a therapeutic approach to provide spirituality, support, and practical feedback to help clients effectively address personal life challenges.

Apr 22, 2020•1 hr 2 min

COVID-19 and Cancer: A Conversation with Otis Brawley, MD

Otis Brawley, MD, a globally recognized expert in cancer control, joins National Coalition for Cancer Survivorship (NCCS) CEO Shelley Fuld Nasso for a conversation about the COVID-19 coronavirus pandemic and how it is affecting cancer survivors, care delivery, and cancer research. Dr. Brawley is a Bloomberg Distinguished Professor of Oncology and Epidemiology at Johns Hopkins University in Baltimore, MD.

Apr 15, 2020•55 min
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