In this One Minute Monday Sarita talks about shared spaces. Many of us started foundations, podcasts, and blogs because we needed or noticed something missing. In that, this spirit of competitiveness [sometimes] arises creating silent discord among the community - a community otherwise in alignment. The rare space, and any space, can be welcoming and full of love when you go in giving that which you're looking to receive. Listen to 60 seconds of Being Rare: Shared Spaces.
May 16, 2022•1 min•Season 2Ep. 4
In this One Minute Monday Sarita talks about trust. Five days a week we send our children to school to be supervised by someone we don't know. They come home talking about their day; all except Elijah. Elijah is small, has limited mobility, and is nonverbal. Because he can't tell us about his day, we have to trust the system and the people responsible for him. Listen to 60 seconds of Being Rare: Trust.
May 09, 2022•1 min•Season 2Ep. 3
Being Rare Podcast welcomes Kate Hart for this special Mother's Day edition episode. Kate is a Trisomy 18 Mom and advocate. Listen as Kate shares love and loss for sweet Hannah, her daughter who was diagnosed in utero with Trisomy 18. Hannah passed away after living 54 days. Join the conversation by following Being Rare wherever you listen to your podcast! Connect with us on social media: IG: @beingrarepodcast TW: @beingrarepod Email us: podcast@theewefoundation.org Other ways to connect: linktr...
May 08, 2022•41 min•Season 2Ep. 2
We all like new things because "new" brings an overwhelming sense of accomplishment. But, sometimes, we shy away from new experiences because the process to achieving "new" is difficult. It's easy to settle in the familiar when the process to newness is hard. Listen to 60 seconds of Being Rare: New Beginnings!
May 02, 2022•56 sec•Season 2Ep. 1
In the US, at least 1 in 7 children experience child abuse or neglect annually. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities, and they are more likely to be seriously injured or harmed by maltreatment. This episode is about child abuse prevention, resources, and support. Joining the conversation is Sallye Longshore, Director, Alabama Department of Child Abuse and Neglect Prevention, The Children’s Trust Fund and S...
Apr 27, 2022•51 min•Ep. 43
This One Minute Monday is about pressure. Sometimes we put way too much pressure on ourselves about almost everything. We've learned that living authentically is so much healthier than creating a perfectly false environment for ourselves or those around us. Listen as Sarita shares 60 seconds of Being Rare!
Apr 11, 2022•1 min•Ep. 42
In this One Minute Monday Sarita talks about celebrating Elijah's birthday today along with every other day, adventure and new milestone! Listen to 60 seconds of Being Rare!
Mar 28, 2022•1 min•Ep. 41
This Being Rare episode is about financial advocacy. Financial advocacy in the context of health involves the ability to assess, understand, and use financial information in ways that support good health and financial outcomes. Understanding Financial Advocacy will explore financial concepts and enhance awareness about best practice financial solutions. Today's guest is Dustin Mayo, Vice President, Retail Market Manager, Synovus Bank. Connect with Dustin: linkedin.com/in/dustinbmayo | instagram....
Mar 24, 2022•1 hr 2 min•Ep. 40
March is Trisomy Awareness Month! Kareem and Sarita sat down with Joe Ott, Inspirational Radio Host for WACE AM 730 to talk about Trisomy 18 and how the E.WE Foundation is raising awareness, providing support, and shifting the conversation surrounding the diagnosis.
Mar 11, 2022•15 min•Ep. 39
In this One Minute Monday episode Sarita talks about emotions. We sometimes shelter our emotions for fear of looking weak. Likewise, sometimes we shelter our emotions for fear of looking angry. Emotions aren't bad and how we express them doesn't have to be pretty. Listen to 60 seconds of Being Rare!
Mar 08, 2022•1 min•Ep. 38
In this One Minute Monday episode Sarita talks about community. Today is Rare Disease Day - a day for the rare disease community to raise awareness about the more than 7,000 rare diseases affecting 300 million individuals globally. Listen as Sarita shares 60 seconds of Being Rare!
Feb 28, 2022•1 min•Ep. 38
Being Rare Podcast is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022! Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose. This exclusive Rare Disease Day episode is about advocacy, pageantry, an...
Feb 28, 2022•29 min•Ep. 36
February is National Parent Leadership Month, dedicated to recognizing the important role of parents and caregivers in their homes and community. Join us as we discuss parent leadership and why it is an important concept to gaining valuable insight into healthcare and community programs benefiting children and families. Today's guests: Molly Martzke and Ebone Kimber *Sponsored by the E.WE Foundation's LEAP program. Connect with Sarita: linkedin.com/in/saritakedwards | twitter.com/saritaedwards |...
Feb 26, 2022•58 min•Ep. 37
In this One Minute Monday episode Sarita talks about being fulfilled. We all take on new projects or tasks with the hope of making something or someone better. But what happens when the projects and tasks no longer fulfill us? Listen as Sarita shares 60 seconds of Being Rare!
Feb 21, 2022•1 min•Ep. 35
In this One Minute Monday episode Sarita talks about feeling rushed. The panic of being late can be overwhelming and distracting. Listen to 60 seconds of realizing it is okay to slow down and potentially arrive late..
Feb 14, 2022•1 min•Ep. 34
In this One Minute Monday episode Sarita talks about compromise. At some point we all compromise - from what to eat - to - which movie to watch. Compromise can be healthy but some things are off limits.. Listen as Sarita shares 60 seconds of Being Rare!
Feb 08, 2022•1 min•Ep. 33
In this One Minute Monday episode Sarita talks about balance. Life will always toss us some unexpected adventures; but we're in charge of the weight we choose to carry and the weight we choose to let go. Listen as Sarita talks about finding balance.
Feb 01, 2022•58 sec•Ep. 32
In this One Minute Monday episode Sarita talks about when unexpected things happening. Listen to 60 seconds of Being [unexpectedly] Rare.
Jan 04, 2022•52 sec•Ep. 31
In this One Minute Monday Sarita talks about resolutions. The New Year has always been a time for change. The 10-to-1 countdown is the end of someone's "old" and the start of someone's "new". Listen to 60 seconds of Being Rare, resolutions.
Dec 28, 2021•57 sec•Ep. 30
In this One Minute Monday Sarita talks about gratitude. Some days gratitude is automatic; other days gratitude seems to be out of reach. Listen to 60 seconds of Being Rare, with gratefulness!
Dec 21, 2021•55 sec•Ep. 29
In this One Minute Monday Repod Sarita talks about saying no. With the holidays upon us it's important to know "your" limits. Listen to 60 seconds of Being Rare, on the road!
Dec 14, 2021•1 min•Ep. 28
In this One Minute Monday Sarita talks about emotions and how we're in charge of how we choose to handle them. Listen as she shares 60 seconds of Being Rare, on the road!
Dec 07, 2021•1 min•Ep. 27
Holidays aren't "happy times" for everyone. A lot of folks are [still] struggling with pandemic life, especially those juggling rare conditions, medical complexities, and mental health challenges. Be conscious of what you say and how you say it. Be considerate of others and what they may be going through! In this One Minute Monday Sarita talks about making the choice to be kind, to others and yourself. Listen as she shares 60 seconds of Being Rare, with kindness!
Nov 30, 2021•1 min•Ep. 26
In this One Minute Monday Sarita talks about being thankful! Listen as she shares 60 seconds of gratitude for her community, social media tribe, and digital family!
Nov 23, 2021•1 min•Ep. 25
In this One Minute Monday Sarita talks about patience, or the lack thereof, when it comes to the school carline. Listen as she shares 60 seconds of Being Rare with a wheelchair!
Nov 15, 2021•1 min•Ep. 24
In this One Minute Monday Sarita talks about being guarded when it comes to Elijah's care. Listen as she shares 60 seconds of Being Rare.
Nov 08, 2021•1 min•Ep. 23
In this One Minute Monday Sarita talks about embracing differences! Listen as she shares 60 seconds of Being Rare!
Nov 01, 2021•1 min•Ep. 22
In this One Minute Monday Sarita talks about taking the opportunity to showcase the coolness of disability. Listen to 60 seconds of Being Rare.
Sep 14, 2021•1 min•Ep. 21
In this One Minute Tuesday Sarita talks about taking time to rest! Listen as she shares 60 seconds of Being Rare.
Sep 07, 2021•59 sec•Ep. 20
In this One Minute Monday Sarita talks about finding a birthday party invite in Elijah's backpack! Listen as she shares her appreciation for his being included.
Aug 30, 2021•1 min•Ep. 19
