This week join your patient co-hosts Danielle Dass, Mariah Leach, and Cheryl Crow as they bring an important topic from the American College of Rheumatology Annual Conference to our show - a session that Mariah and Cheryl led at the conference! This episode will be part of a series of planned episodes on postpartum challenges for new mothers living with AiArthritis Diseases. Today’s episode will focus on the emotional and physical challenges of breastfeeding. Mariah Leach is the founder of Mama’...
Dec 13, 2020•32 min•Ep. 82
This week join your patient co-hosts Tiffany Westrich-Robertson, Deb Constein, and Patrice Johnson as they take us back stage at the American College of Rheumatology Annual Conference. This episode will focus on a session from ACR titled “Grit, Gratitude, and Grace” about the impact that positive psychology can have on disease and pain management for AiArthritis patients. Researchers induced pain in healthy adult military cadets to study the relationship between mindset and pain perception. They...
Nov 29, 2020•25 min•Ep. 81
Special Series: American College of Rheumatology (ACR) Scientific Meeting 2020, "Go with Us!" to Conferences program This week join your patient co-hosts Tiffany Westrich-Robertson, Deb Constien, and Patrice Johnson as they take us backstage at the American College of Rheumatology Annual Conference. Tiffany and Deb attended two sessions at the conference on Stills Disease, and they brief Patrice and the rest of us on what they learned. Regardless which "auto" disease you have, this conversation ...
Nov 15, 2020•46 min•Ep. 80
Join Patrice, Effie, and Rick as they share their experiences with support - which all differ per personal relationships and perspectives. That means there are different needs that we must address to help everyone. Patrice has no support from her spouse, Rick has tremendous support from his, and Effie weighs in on support needs from a single's point of view. They also talk about the needs of all others involved in our journey, as AiArthritis diseases impact every person in our lives. In turn, th...
Nov 01, 2020•29 min•Ep. 79
This week join your patient host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, for a special AiArthritis Watch Party for the announcement of the winners of the 9th Annual WEGO Health Awards. The WEGO Health Awards were created to embody the mission of WEGO Health: to empower patient leaders by recognizing their contributions to the field of healthcare. There are 16 categories of awards that this year included over 13000 nominees and 96 finalists. AiArthritis is thr...
Oct 18, 2020•16 min•Ep. 78
This week join us for an AiArthritis Voices 360 first! In honor of World Arthritis Day on October 12, 2020, seven of your recurring Voices 360 co-hosts come together for an essential conversation about educating the public and the medical community about the many different types of arthritis that exist, especially the key differences between Osteoarthritis and AiArthritis. Thank you to Tiffany Westrich-Robertson, Deb Constien, Rick Phillips, Effie Koliopoulos, Patrice Johnson, Suz Schrandt, and ...
Oct 04, 2020•1 hr 1 min•Ep. 77
The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders so, together, we can solve problems impacting the autoimmune and autoinflammatory arthritis community. Join Tiffany Westrich-Robertson, CEO, as she explains that each person - and our associated roles - are like marbles. If each stakeholder group is a color, and only one color is in the jar, we will never develop solutions that matter to all stakeholders involved in the problem. So...
Sep 20, 2020•17 min•Ep. 76
This week join your patient host Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, as she discusses the mission and future projects of the organization and the AiArthritis Voices 360 Talk Show. The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders about solving problems facing the autoimmune and autoinflammatory arthritis community. AiArthritis is proud to announce the impending publication of the first-ever...
Sep 13, 2020•23 min•Ep. 75
This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis, and Juana and Estela Mata, co-founders of Looms 4 Lupus, as they discuss the complicated issues surrounding supporting patients living with autoimmune and autoinflammatory arthritis diseases and their loved ones. Looms 4 Lupus is an organization dedicated to providing an environment for education and outreach to Lupus and Fibromyalgia survivors and their family members through multip...
Aug 30, 2020•39 min•Ep. 74
Join TIffany and Rick as they address the challenges involved as Treat 2 Target has emerged from aggressive treatments for a larger population to treating per the individual and based on the complexity of each disease. Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted! If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other hea...
Aug 23, 2020•54 min•Ep. 73
This week, Tiffany and Patrice discuss the importance of biomarkers. Do biomarkers hold the key to understanding disease severity and predicting disease onset? In this episode, we talk about biomarkers, or a measurable indicator present in the blood or tissues, and how their presence in our bodies can predict disease severity and guide treatment development. Furthermore, evidence that identifying biomarkers early - BEFORE DISEASE ONSET - could actually prevent a person from developing the diseas...
Aug 16, 2020•44 min•Ep. 72
Today Tiffany talks about Posters & Abstracts, or summaries of research, thousands published annually just within the rheumatology community. So, unless the poster is featured in a session, attendees must search the poster database to learn about recent, current, or ongoing research that may be of importance to know. As we continue our tour of the EULAR scientific conference*, we are inviting patients from around the world to join our team in patient-led Poster/Abstract research reviews. Dur...
Aug 09, 2020•26 min•Ep. 71
This week Tiffany (axial spondyloarthritis) and Deb (rheumatoid arthritis) talk about their experiences - and which could be YOUR experiences - having your voice count in research initiatives. New primary outcomes (endpoints that should be measured) in rheumatology trials where shared-decision making between doctors and patients are required...and patients were part of this historic decision. This was part of the international, collaborative of rheumatology stakeholders - OMERACT (Outcome Measur...
Aug 02, 2020•34 min•Ep. 70
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/podcast . Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted! If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the con...
Jul 26, 2020•37 min•Ep. 69
We don't represent patient voices, we are the patient voices. We work hard to ensure ALL voices - not just a small percentage of select patients - are counted. And now we have the platforms in place to include everyone's voice who diagnosed with AiArthritis diseases - regardless of geography or disease limitations. We also have the tools and professional experience to bridge the patient conversation with other stakeholders (doctors, nurses, researchers, legislators, drug manufacturers, non-pharm...
Jul 19, 2020•29 min•Ep. 68
Welcome to AiArthritis Voices 360, the official Talk Show for the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis). In this episode, Event Host, AiArthritis CEO and person living with AiArthritis diseases, Tiffany Westrich-Robertson, is joined by patient Co-Host, Katie Steele. They speak with Carrie Beach, RN, from the Rheumatology Nurses Society (RNS) about our collaboration to improve patient voices in education and research (featuring our award-finalist P...
Jul 12, 2020•34 min•Ep. 67
While we asked Ms. Durazo if we could keep this resource for you to help navigate your challenges with invisible disease, she declined, stating the contract to use the Angela Durazo brand was only agreed upon for a one year term. You can find several other invisible disease episodes and associated conversations to join! We have connected this show space with a previous episode on invisible disease. Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opp...
Jul 05, 2020•55 min•Ep. 66
Welcome to AiArthritis Voices 360 - the talk show hosted by the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis), whose mission is to help others, like us, living with AiArthritis diseases, have a voice "at the table" alongside other stakeholders as equals, to solve problems that impact education, advocacy, and research. This week Tiffany, Deb, and Patrice are learning while having a great time as they have been "at EULAR 2020", which was supposed to take pl...
Jun 28, 2020•54 min•Ep. 65
Welcome to AiArthritis Voices 360 At The Table. For our final Wednesday minisode, we have important news to share as we re-structure our podcast to expand our platform to appeal to all potential patients...and so, in turn, more voices can be "at the table". Tune in to learn more about this exciting transformation! Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted! If you are a patient, a parent of a juvenile pa...
Jun 24, 2020•17 min•Ep. 64
In this episode, Tiffany Westrich-Robertson, CEO of the International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) reflects on her choices about motherhood. While she never felt the "mother bug" to have children of her own, failed relationships led her on the path to dedicate her life to her career - and ultimately she "birthed" this organization. Like a parent, she has given her heart and soul into its' development over these 9 years and is proud of the accomplishmen...
Jun 21, 2020•20 min•Ep. 63
This mini-episode originally aired in our AUTO Ball LIVE event (May 16 - 20th on Facebook), but the topic is so important we turned it into a fully produced episode! Tiffany discusses the importance of raising awareness that the AUTO diseases - autoimmune and autoinflammatory diseases - that include arthritis as a major clinical component are not the same as other types of arthritis. Specific examples include osteoarthritis (due to aging, wear and tear, injury, or excessive pressure on the join)...
Jun 17, 2020•14 min•Ep. 62
Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE, to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases while honoring the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts. Differentiating Arthritis Types will help all people, with all types of arthritis, gain more understanding - and possible respect - for their condition, will incr...
Jun 14, 2020•1 hr 30 min•Ep. 61
In this week's mini-sode, Tiffany talks about the importance of being counted in research, especially in times when a new disease emerges and only a select few are truly being studied. This is the case with COVID-19, as most research emerging is based on studying people with confirmed positive results. However, due to lack of testing, false negatives (and positives), and other challenges associated with a disease in its' infancy, it's more important now than ever to ensure ALL people, perspectiv...
Jun 11, 2020•18 min•Ep. 60
Join Tiffany and Deb, fellow patient co-hosts, for the AiArthritis Voices 360 Talk Show as they welcome Dr. Lisa Zickuhr, rheumatologist from Washington University School of Medicine, to discuss the barriers and benefits of e-health/telehealth as we navigate the new world of COVID-19. How are online visits impacting YOUR care with your rheumy? What is working? What isn't? What do we need to improve? During this discussion, Dr. Zickuhr explains current efforts to streamline e-health visits as we ...
Jun 07, 2020•1 hr 5 min•Ep. 59
The European League Against Rheumatism (EULAR) 2020 Scientific Congress, which was supposed to take place in Frankfurt, Germany June 3 - 6 is now being held ONLINE starting June 3 and accessible to patients FOR FREE* through September 1st! Attend with AiArthritis and we will help you navigate the meeting, but also you can join us for post-session conversations, be part of the meetings with other attendees and more! Find us LIVE on YouTube, June 3 at 4pm EST/1pm PST here: https://youtu.be/bOSHJWG...
Jun 03, 2020•56 sec•Ep. 58
This week join your patient co-hosts Tiffany Westrich-Robertson, CEO of International Foundation for AiArthritis and Deb Majcher Constien, AiArthritis volunteer and patient advocate, as they discuss the importance of AiArthritis leaders attending conferences. At EULAR (European League Against Rheumatism) Congress in 2019, Tiffany and Deb attended a session on the existing efforts to advance e-health so we could reach more rheumatic patients and, in turn, improve their health. They are joined by ...
May 31, 2020•1 hr 3 min•Ep. 57
Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE for the AUTO Ball Online to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases and to honor the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts. This episode of AiArthrits Voices 360 was recorded during the AUTO Ball Online event. For more information about the AUTO Ball, visit aiarth...
May 27, 2020•27 min•Ep. 56
Between May 16 - 20th, we took our AiArthritis Voices 360 Talk Show LIVE, to help teach more people who we are, what we do, and how we impact the lives of those affected by AiArthritis Diseases while honoring the 450 million people worldwide living with our diseases. It also served as the starting line for our 2020 fundraising efforts. This inaugural gala, the AUTO Ball, was originally scheduled to take place in St. Louis, MO, our headquarters, at the National Museum of Transportation - Earl C. ...
May 24, 2020•1 hr 1 min•Ep. 55
We are proud to host World AUTOimmune & AUTOinflammatory Arthritis Day #aiarthritisday for the 8th year since we established this day in 2012. Get involved throughout May 20th - as it travels through all time zones globally - that's 47 hours! We are playing on the word AUTO to DRIVE awareness that our diseases are FULL BODY. If your disease was compared to a car - or auto part - how would you describe it? Are you a "classic" (text book), maybe a convertible because of all the brain fog, have...
May 20, 2020•57 sec•Ep. 54
Welcome to AiArthritis Voices 360! This week, we are excited to invite you all to join us at the table LIVE for the AUTO BALL, where we sit down with patient Co-Hosts and others from around the world to talk about the important work we are doing to improve global awareness, early detection & diagnosis, precision medicine, and more! You will find our series of live broadcasts on Facebook @IFAiArthritis starting Saturday, May 16th through Wednesday, May 20th. For a complete schedule of events,...
May 17, 2020•57 sec•Ep. 53
