Managing AiArthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more. Dr. Lee shares her journey from caregiver to changemaker and how IMIDeology is improving access, diagnosis, and treatment through an innovati...
Jun 01, 2025•41 min•Ep. 145
AiArthritis diseases can be difficult enough to manage—but what happens when the symptoms don’t fit neatly into a diagnosis? In this episode, AiArthritis Health Education Manager Leila shares her perspective on the “mystery patient” experience, those living with serious, ongoing symptoms but still searching for answers. Leila revisits key conversations from past episodes and introduces new resources, including our updated Mystery Patient Guide and the AUTO + Inflammatory Arthritis = X or YZ Proj...
May 04, 2025•25 min•Ep. 144
Autoimmune diseases like lupus and Sjogren’s disease are often associated with joint pain, fatigue, and organ involvement, but their impact on the nervous system is less commonly discussed. In this episode, Dr. Julius Birnbaum, a leading expert in neuro-rheumatology, joins us to explore the neurological manifestations of these conditions and what patients need to know. From brain fog and memory issues to more severe complications like neuropathy, Dr. Birnbaum explains how these diseases affect t...
Apr 06, 2025•56 min•Ep. 143
Parenting is challenging, but adding a chronic illness like rheumatoid arthritis brings unique obstacles. In this episode, co-host Eileen shares her journey of raising a child while managing RA, from coping with fatigue and pain to adjusting expectations. She’s joined by her 12-year-old son, Jacob, who offers his perspective on growing up with a parent who has a chronic illness. Together, they discuss the struggles, unexpected lessons, and ways they support each other. Whether you're a parent na...
Mar 02, 2025•22 min•Ep. 142
What does it mean to be diagnosed with undifferentiated disease (UD)? In this episode, Tiffany Westrich-Robertson, AiArthritis CEO and founder, unpacks this complex diagnosis, sharing her personal journey from being a mystery patient to receiving a UCTD diagnosis. Tiffany explains how undifferentiated disease fits into the autoimmune.autoinflammatory spectrum, its implications for treatment, and why early intervention is critical. Join us on this episode to explore what undifferentiated disease ...
Feb 02, 2025•22 min•Ep. 140
Join us for a special episode where we reflect on the top three most-listened episodes of 2024! Leila revisits these engaging conversations that resonated deeply with the AiArthritis community, covering mental health, navigating the patient journey, and reproductive health. These episodes highlight the challenges and triumphs of living with autoimmune diseases, offering practical strategies and heartfelt support. Whether you're a patient, caregiver, or ally, this roundup of impactful discussions...
Jan 05, 2025•40 min•Ep. 139
In this episode, our co-hosts share key takeaways and important updates from the American College of Rheumatology (ACR) Convergence 2024. Leila, Tiffany, Cristina, and Deb discuss cutting-edge therapies, chronic pain management strategies, and groundbreaking research on conditions like lupus, Sjögren’s, and psoriatic arthritis. Join us for an insightful and empowering conversation that highlights the strides being made in the AiArthritis community. Donate to Support the Show: https://www.aiarthr...
Dec 01, 2024•46 min•Ep. 138
In this episode, co-hosts Leila and Brittany dive into the power of patient voices in transforming the healthcare experience for the AiArthritis community. They bring empathy and validation to stories submitted by listeners, highlighting real struggles with insurance, pharmacy issues, and the emotional toll of chronic illness. Brittany also shares key takeaways from the recent Autoimmune Community Summit, covering practical tips for self-management, understanding the influence of environmental f...
Nov 03, 2024•51 min•Ep. 137
In this episode of AiArthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the AiArthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. Tune in to learn about AiArthritis’s new online social community and how you can contribute your story and...
Oct 06, 2024•31 min•Ep. 136
In this episode, our co-hosts bring you an exclusive look into the AiArthritis “Go With Us!” to Conferences program. We dive deep into EULAR 2024, the European Rheumatology Research Conference, where patients and co-hosts reveal groundbreaking advancements in AiArthritis research. Discover the latest on CAR-T therapy, innovative pain management tailored for patients, the role of opioids in addressing pain and fatigue, and practical strategies for battling brain fog. Gain valuable insights and pr...
Sep 01, 2024•49 min•Ep. 135
Welcome to a milestone episode of AiArthritis Voices 360 Talk Show! Join us as we celebrate our 100th episode by revisiting three of our most impactful discussions that have resonated deeply with our listeners. Episode 73: "Arthritis" Awareness - It’s Complicated! Dive into the complexities of arthritis awareness with our co-hosts as they share personal stories of delayed diagnosis and the profound impact it had on their lives. Discover why education and awareness for AiArthritis diseases are cr...
Aug 04, 2024•42 min•Ep. 134
In this episode, co-hosts Charis Hill and Jae Walker delve into life after COVID-19, focusing on the unique challenges faced by individuals with AiArthritis diseases. They discuss the importance of continued precautions in healthcare settings, share their own personal experiences, and offer practical advice for staying safe. Tune in for an insightful conversation on navigating the ongoing reality of COVID-19 while managing chronic illnesses. Episode Highlights Understanding the ongoing complexit...
Jul 07, 2024•55 min•Ep. 133
In this episode, our co-hosts Estela and Juana delve deep into the often overlooked but critically important topic of mental health for those living with AiArthritis diseases. They discuss the significant impact these health challenges have on both the body and the mind, supported by eye-opening statistics that 52% of patients with autoimmune diseases are diagnosed with a mental health condition within a year. Tune in to hear Estela and Juana break down the science behind these connections, shar...
Jun 02, 2024•47 min•Ep. 132
In this episode, Leila shares the exciting plans for the upcoming World AiArthritis Day on May 20th with AiArthritis. Delve into why raising awareness for AiArthritis diseases is crucial and discover ways you can actively participate on the global initiative. Through flashback segments, our co-hosts dissect the layers surrounding the term "arthritis," unraveling misunderstandings, family judgments, and the complexities of distinguishing AiArthritis from other conditions. Tune in for insightful d...
May 05, 2024•34 min•Ep. 131
In this episode, co-hosts Leila, Estela, and Kerry delve into the crucial topic of social wellness amidst living with AiArthritis disease. They explore the essence of social wellness, its significance and sharing personal insights on navigating social lives while managing health challenges. Join our co-hosts as they discuss both the supportive and challenging dynamics of maintaining an active social life with an AiArthritis disease and how online communities can positively impact social wellness...
Apr 07, 2024•1 hr 1 min•Ep. 130
Curious about how volunteering with AiArthritis could transform your life and the lives of others? In the latest episode of AiArthritis Voices 360 Talk Show as co-hosts Leila, Michael, Jenni, Deeanne, Patrice, and Deb share heartfelt stories of their journey into volunteering with AiArthritis. From personal experiences to the profound impact AiArthritis has had on their lives as patients, they delve into the transformative power of community support. Discover why volunteering is vital and how th...
Mar 03, 2024•49 min•Ep. 129
This is an AiArthritis Voices 360 REWIND, where we are bringing back the first RheumyRound episode from 2020 where we opened the conversation on improving doctor office visits! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis. Join us as our co-hosts, Tiffany and Kelly, and guests, Dr. Kim and Jerik Leung, explore the important dynamic between patients and doctors in healthcare communication. Through insightful dialogue and shared experiences from both the pat...
Feb 04, 2024•36 min•Ep. 128
Welcome to AiArthritis Voices 360! In this episode, Leila, the Health Education Manager at AiArthritis, delves into the impact of AiArthritis diseases on reproductive health, sharing insights from the RNS and ACR 2023 conferences. Leila delves into the myriad challenges individuals encounter, including delayed puberty, heightened disease activity during menstrual cycles, and the heightened risks associated with unplanned pregnancies. Navigating the intricate landscape of family planning within t...
Jan 07, 2024•38 min•Ep. 127
This episode is a 360it revisiting the topics put on the table during Episode 88 : Biosimilars - Interchangeability & Switching 2023 Join us in this breakout 360it from Episode 88 Biosimilars : Interchangeability & Switching 2023 as we dissect the Inflation Reduction Act (IRA) and its potential fallout on patient access to diverse treatment plans. Tracing the historical trajectory of the IRA, we uncover its role in price negotiations and the concerning shift in investments away from crit...
Jan 05, 2024•1 hr 3 min•Ep. 126
Join us in this episode as co-hosts Tiffany and Deb share a recap of the 2023 ACR, American College of Rheumatology Conference and how these topics specifically affect AiArthritis diseases. Tiffany and Deb also share an insight into our program, “Go With Us!” to Conferences. The Go With Us program allows patients to attend these conferences in real time and get updates on different important or emerging topics for AiArthritis diseases. In this episode, the co-hosts discuss some main conference t...
Dec 03, 2023•1 hr 7 min•Ep. 123
This is an AiArthritis Voices 360 REWIND, where we are bringing back two short episodes that were recorded way back in 2019, because chances the topics are very important! Also note - you will hear the acronym IFAA, which we used prior to using AiArthritis. The first segment revisits an episode where Tiffany is joined by Dr. Apostolos Kontzias to explore the distinction between autoimmune and autoinflammatory diseases. In the second segment Tiffany discusses the importance of differentiating bet...
Nov 05, 2023•38 min•Ep. 122
At AiArthritis, we represent those diagnosed, their care partners/support network, and the undiagnosed (often called the “Mystery Patients”). This episode is for those struggling to get diagnosed. Join co-hosts Tiffany, Kerry and Danielle as they share their personal diagnosis struggles and delve deep into the challenges many other patients face on their diagnosis journey. From navigating initial symptoms to facing dismissive healthcare providers due to 'normal' blood work, we're talking about c...
Oct 01, 2023•43 min•Ep. 121
Tune in to the latest episode of AiArthritis Voices 360 Talk Show, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with AiArthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. From Deb's journey triggered by a bunion removal to Kerry's hip replacement due to the complex interplay of autoimmune conditions or Leila’s gastric sle...
Sep 03, 2023•1 hr 2 min•Ep. 120
This episode is a Step 5 - revisit to the table - as outlined in our 6 Step Patient-Led Problem Solving Process . What do patients need to know about the upcoming changes to biosimilars and interchangeability in 2023? In this episode, Tiffany is joined by esteemed guest experts Michael Reilly, Dr. Ralph McKibbin and Andrew Spiegel to explore the difference between interchangeability , automatic substitution, and non-medical switching. Gain valuable insights into how these differences impact pati...
Aug 06, 2023•59 min•Ep. 119
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding? Welcome to AiArthritis Rant Discussions - Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. In this episode, our co-hosts Leila, Charis, and Patrice dive into the rants submitted by our AiArthritis community and they'll...
Jul 02, 2023•48 min•Ep. 118
In this episode, Tiffany will discuss how different organs can be impacted by the disease and the difference between an organ being part of a disease and being a comorbidity. Tiffany will be exploring some examples of organs being affected in various diseases such as eyes, heart, gastrointestinal, and kidneys, as well as a newer autoimmune disease, IgG4, that is commonly being diagnosed for patients alongside their AiArthritis disease. It is crucial for patients to be proactive in their healthca...
Jun 04, 2023•24 min•Ep. 117
Have you found yourself struggling to explain your AiArthritis disease to others? In this episode, our co-hosts Leila, Charis, and Patrice put a new topic on the table: how to explain your AiArthritis disease in a 30-60 second elevator pitch. From your workplace to your personal life, our co-hosts will provide practical tips on how to tailor your elevator pitch to different audiences such as co-workers, family, friends or strangers to help you confidently communicate your AiArthritis and advocat...
May 07, 2023•45 min•Ep. 116
Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one? In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis. They discuss the emotional toll that comes with being a mystery patient, including the frustration, anxiety, and uncertainty that can ling...
Apr 02, 2023•42 min•Ep. 115
Have you or your family been affected by juvenile arthritis? On this episode, Tiffany is joined by Rochelle Lentini, CEO and President of Purple Playas Foundation, who have united with other specialists and families to identify additional tips to improve communication. During this episode, Rochelle and Tiffany discuss this new collaboration project between AiArthritis and Purple Playas Foundation, along with Rheumatology Nurses Society and Novartis, to create discussion aids and question guidanc...
Mar 05, 2023•38 min•Ep. 114
Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with AiArthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process. We also delve into the exciting new resource tool being developed by AiArthritis, which helps patients navigate the process of seeking a diagnosis, understanding symptoms, and asking the right questions of their doctors. Plus, we invite ...
Feb 06, 2023•38 min•Ep. 113
