A 25 Year Look Across the Spectrum with Kelly Bermingham & Jen Lucero - podcast cover

A 25 Year Look Across the Spectrum with Kelly Bermingham & Jen Lucero

Kelly (McKinnon) Bermingham, MA, BCBA has 25+ years in the field of helping adults and children with autism. Kelly and Jennifer, mom to Dylan (with ASD age 21) share their experiences and talk about different topics related to supporting and living with autism. Kelly was the 1,368th BCBA in the world. Listen to her experience shared with Jenn and learn how they combine research topics with real-life experiences in these quick and easy to listen episodes. Providing Help and Hope!
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Episodes

Surviving the Doctor Appointment with your Autistic Child

We are baaaaaack! Kelly, BCBA for 21 years, and Jen, mom to Dylan and Ethan talk through the best way to approach doctor's appointments with your autistic child. With nearly 40-80% of autistic individuals having medical co-morbidities, going to the doctor is not for the faint of heart for families. Listen to a caregiver's perspective over the years and how ABA providers can help support these appointments. The Association for Science in Autism Treatment has fantastic resources to share with medi...

Sep 16, 202426 min

The Dreaded Blood Draw

Studies show that individuals with ASD have greater medical fears as compared to their peers. Kelly & Jen share their experience, strategies and research related to blood draws from their perspectives with their children who are now fully comfortable and independent in getting their blood drawn after years of stress! Information: ⁠A pilot study to improve venipuncture compliance in children and adolescents with Autism Spectrum Disorders - PMC (nih.gov)⁠ ⁠Blood Work Parents.pdf (autismspeaks....

May 20, 202428 min

Measuring Quality of Life as an Outcome of ABA Services

Kelly and Jen are joined by Meghan Herron, Director of Research and Development from Easterseals, Southern California to discuss her research looking at measuring Quality of Life as an outcome for ABA services and discuss how this can be considered by any ABA practitioner, working alongside families. Questionnaires - kidscreen.org Sponsored by: Cite Pro

Apr 08, 202431 min

QOL Measured by Happiness Indices in Recreational & Leisure Events

There is research that suggests that individuals on the autism spectrum experience a much lower quality of life than nonautistic individuals across the lifespan. Quality of Life can be measured by happiness, which is considered a private event by behavior analysts. Indices of happiness are those observable behaviors that likely signal happiness, including smiling, laughing, and the absence of challenging behaviors. Both leisure skills and recreational skills are all ways to be happy yet are not ...

Apr 01, 202425 min

The Group Experience

Kelly talks about her new book, including programming social skills intentionally to include group learning for children, and the difference between curriculum-based and activity and individualized learning. Buy her book here: The Group Experience – Different Roads (difflearn.com) Sponsored by Cite Pro

Mar 18, 202425 min

Helping Behavior Therapists/RBT's with Burnout: Let's Get Real

Kelly and Jen talk with long-time RBT's Stephanie and Salvador about how they have managed to stay in the field for so long, and the real ways BCBA's and families can help support and prevent burnout. It's pretty real concrete and not rocket science.

Feb 26, 202432 minSeason 3Ep. 10

Parent-Led ABA......Hmmmm

A new trend in the field of Applied Behavior Analysis is for parents to be the Behavior Therapist/RBT for their child while being supervised by a BCBA. Kelly and Jen discuss this trend from their perspective of their 20 years of experience. Article referenced: https://bhbusiness.com/2024/01/09/parents-are-desperate-parent-led-aba-provides-tantalizing-remedy-to-autism-therapys-challenges/ Sponsored by: Cite Pro

Feb 19, 202431 minSeason 3Ep. 9

A BCBA and a Caregiver Talk ABA Hours Fulfillment

Kelly and Jen talk about each of their perspectives regarding fulfilling the recommended hours of authorization. Some ABA companies often refer a family there to another agency if they do not commit to being able to use all of the hours. What do you think?

Jan 29, 202426 minSeason 3Ep. 8

Weeding Through Evidenced-Based and Alternate Therapies

Families raising a child on the autism spectrum are faced with many different types of therapy and alternative options to try and help their child. Most are not evidence-based, some may even be harmful, while others may have a different, yet positive outcome than intended. Kelly & Jen talk about how families may make decisions and how BCBAs can follow their ethics code with kindness to help support and make decisions. Sponsored by: Cite Pro

Jan 13, 202429 minSeason 3Ep. 9

Got Ethics?

Kelly discusses the history of the development of the BACB ethics code and her journey with ethics for the last 28 years with Maria Sasaski Solis, owner of the Sasaki Behavioral Group, APBA Board Member, and Co-Moderator of the Ethics Sig for CASP. Sponsored by CitePro Cite Pro You can find the Dear Don Casp Ethics Webinar here: Dear Don Ethics Panel (Nov 2023) - recorded - Council of Autism Service Providers (casproviders.org)

Dec 09, 202328 minSeason 3Ep. 6

Autism and Divorce

Although the data is varied, some data suggests that parents of a child diagnosed with autism have a higher chance of divorce than their counterparts, especially if they are younger when married and have a child early on in their marriage. Parents raising children with autism experience greater marriage strain in part due to stress related to resources, severity of Autism symptoms, and concerns over long-term care. Kelly and Jen have both experienced this firsthand and share their experiences. S...

Nov 06, 202331 minSeason 3Ep. 5

ABA & ADHD: From a Caregiver & BCBA Perspective

Kelly and Jen speak to Jennifer, BCBA, and mom to her 13-year-old son with ADHD. She shared his struggles with ADHD and anxiety coming out of the pandemic, trying to organize his homework and keep us with social pressures that ultimately led to hospitalization. Research tells us there is a stronger link between homework difficulties and ADHD than the general population. The National Institute of Mental Health suggests medication and behavioral therapy as the two main treatments. But how do you k...

Oct 16, 202333 minSeason 4Ep. 4

Cyber Safety & Autism

Up to 75% of autistic children and adults will be bullied over the internet or taken advantage of in some way. Predators look for those who may not understand the nuances of social cues making autistic children and adults targets. In this podcast, Kelly speaks with Dennis Debbaudt, long-time safety trainer and author on how to create a cyber safety plan. Links for filters and protections can be found here: Dennis: Autism Risk & Safety Management | Autism Training for Police (autismriskmanage...

Oct 09, 202330 minSeason 4Ep. 3

Considering the Behavior Therapists Perspective

Kelly & Jen talk with long-time Registered Behavior Therapist Salvador Cadenas about why he works with children and adults on the autism spectrum with severe behavior and shares his perspective on what BCBAs and families get right to keep behavior interventionists (RBTs) in their jobs, and what they don't get right, which may contribute to turnover and burnout. In this session, we also discuss the importance of not using jargon when working with families and reference the following research ...

Sep 16, 202333 minSeason 4Ep. 2

The Benefits and Challenges of Exercise with Children and Adults on the Autism Spectrum

Jen & Kelly talk about the benefits of exercise. Did you know that exercise has been proven to increase flow to the brain, help with concentration, and improve sleep? With devices taking over, children and adults are exercising less. Kelly & Jen talk about all of the benefits and programs Special Olympics has to offer including both team and individualized programs that may be more fun and effective. Kelly & Jen also talk about ways to use simple ABA strategies to get kids moving in ...

Sep 02, 202331 minSeason 4Ep. 1

Considering Medical Needs as Behavior Analysts and Caregivers

Kelly & Jen wrap up season 3 by talking about the Ethics Code for Behavior Analysis, specifically 2.12, Considering Medical Needs. "Behavior Analysts ensure, to the best of their ability that medical needs are addressed and make referrals as needed." From the caregiver's perspective, finding qualified medical professionals that understand and even help those on the autism spectrum is nearly impossible. With GI disorders nearly eight times more common in children and adults with autism than o...

Jun 05, 202327 minSeason 3Ep. 16

Joint Attention is a Behavior Cusp Skill

When an infant's attention is drawn to another person's face and voice, they experience a positive emotion as the amygdala and prefrontal cortex are activated. These networks are often faulty in children on the autism spectrum. As a result, no MO is created for wanting to look toward others. Coordinated eye gaze and shared experiences with others, knowns as joint attention, is considered a prerequisite skill for other skills including imitation, social engagement, and communication, a behavior c...

Apr 09, 202325 minSeason 3Ep. 13

To use Extinction or to not use Extinction

Extinction can best be defined as the discontinuing of reinforcement of a previously reinforced behavior (i.e., response no longer produces reinforcement). The goal of extinction is for the behavior to cease without having used a punishment procedure. Over the years the concept of extinction has become controversial. Kelly & Jen break down the different functions of behavior and discuss why extinction may or may not be warranted, from a BCBA and a caregiver perspective. Sponsored by: Cite Pr...

Mar 19, 202328 minSeason 3Ep. 12

How do you Connect with a Person Severely Impacted on the Autism Spectrum

Kelly and Jen speak with frequent guest Susan Senator about her recent article, "The Secret to Connecting with My Autistic Son." Is it something learned, or do you have to be taught? Why will some people work with the more severely impacted children and adults on the autism spectrum and why won't others? What's the secret to connecting with this group of people? Susan Senator is the author of numerous autism books; her writing has appeared in the New York Times, and The Washington Post, among ot...

Feb 27, 202326 minSeason 3Ep. 11

Neurodiverse and Severe Autism: Can't We All Get Along?

Kelly & Jen talk about the role of ABA, strength-based assessments, and the ethical considerations when assessing and treating people with autism across the varying levels of severity of autism, with considerations of consent and assent. Sponsored by Cite Pro

Feb 16, 202329 minSeason 3Ep. 10

We Feel Like Frauds Today

Parenting a child on the spectrum, being a BCBA supporting that parent, is all hard work! Even after over 20 years, we don't always know what to do and feel lost! We talk through how we both had a week feeling like frauds, and how we brought ourselves out of it (again) to continue marching on! Sponsored by Cite Pro

Jan 23, 202324 minSeason 3Ep. 9

Dinosaurs of ABA

Kelly is joined by Amanda Ralston, founder of Non-binary Solutions. Home | NonBinary Solutions . Kelly has been certified by the BACB for over 20 years, and Amanda since the turn of the century! They discuss their journey in the field including the changes that have happened in the field; working without any formal code of ethics until 2014 and being 2 women in a field dominated by men. The future indicates that while we are still a young field with much to accomplish, technology, compassionate ...

Jan 11, 202329 minSeason 3Ep. 8

The real holiday tips! Tips beyond the basic tips!

Kelly is joined again with Kelly Haysley, mom to 3 children, 2 on opposite ends of the spectrum to talk about the REAL tips for getting through the holidays, beyond the fluffy memes you see out there posted this time of year. They talk about individualizing the holidays for each child and family, including how to find joy in the season, the unschool time, and the non-therapy therapy. (Jen was out sick! She will be back next week!) Sponsored by Cite Pro...

Dec 20, 202230 minSeason 3Ep. 7

Understanding the cycle of grief, guilt and joy raising a child on the autism spectrum

Kelly & Jen are joined by mom and advocate Kelly Haysley, mom to three children, two diagnosed on the autism spectrum. We discuss Kubler-Ross cycle of grief, and how this cycle repeats and repeats, adding guilt and stress, and how embracing the joyful times are worth it, even if it means not "running the program and taking data". They have specific tips for BCBAs to know. Five Stages Of Grief - Understanding the Kubler-Ross Model (psycom.net) Sponsored by Cite Pro...

Dec 12, 202240 minSeason 3Ep. 6

Got sleep? Not likely if you are raising a child with ASD

Sleep problems are among the most urgent concerns for families grappling with autism. Nearly 80% of toddlers with ASD have disrupted sleep. Issues related to falling asleep, and more importantly staying asleep result in those living with ASD being in REM sleep 15% of the time, vs 23% of their neurotypical counterparts. But what about the caregivers? How does this affect them, and what can we do as BCBAs to help? Kelly & Jen talk all things strategy they have learned over the last 25 years. F...

Nov 29, 202228 minSeason 3Ep. 5

A Call for a Discussion on Stereotypic Behavior

Kelly & Jen speak with Melissa Saunders, Ed. D, BCBA-D about her, and others recently published paper, A Call for a Discussion on Stereotypic Behavior. This topic has become a very decisive topic and the three break down the topic in a way BCBAs and caregivers can relate to. Find the paper here: Full article: A call for discussion on stereotypic behavior (tandfonline.com) . We are proudly sponsored by Cite Pro...

Nov 08, 202232 minSeason 3Ep. 4

Compassionate Collaboration & Ruling out the Medical Stuff

Taylor, Leblanc & Nosik wrote about the need for training for BCBAs and compassionate care. Their survey of caregivers found that many caregivers feel their BCBA is distracted and too focused on solving the problem. Kelly & Jen discuss what this looks like and talk about how the medical issues for those living with autism, like Dylan, can be so stressful and impactful on the family, compassion is key. Compassionate Care in Behavior Analytic Treatment: Can Outcomes be Enhanced by Attendin...

Oct 24, 202225 minSeason 3Ep. 3

What caregivers want from their BCBA

Most BCBA training programs don't discuss caregiver perspectives, yet caregivers are the ones raising their children with autism. Caregivers often meet up to 10 different BCBA's in their journey. Listen to Kelly & Jen talk about the good and the not-so-good things a BCBA can do when meeting and working with families with children with autism. Kelly references her favorite article on this compassionate care model, written by Dr. Taylor, Dr. LeBlanc, and Dr. Nosic. Compassionate Care in Behavi...

Oct 04, 202229 minSeason 3Ep. 3
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