The Lupus Warrior: Amanda Chay
Episode description
One time yoga instructor Amanda Chay a.k.a the Lupus Warrior, author of new book The Girlfriend's Guide to Lupus: How to Control your Sh*tty Diagnosis (10/23), a self-help book for women who feel scared and alone with their lupus diagnosis.
About 1.5 million Americans have lupus, and there are an estimated 16,000 new cases each year. More than five million people worldwide have some form of the disease and ninety percent (90%) of people living with lupus are women. When asked about the most difficult aspects of coping with lupus, 65% said pain, 61% cited lifestyle changes, and 50% reported emotional problems.
Amanda’s long battle with lupus, which often drives her bonkers, has fueled her passion for helping other women suffering from the disease. When she was diagnosed, searching for stories like hers was frustrating. She needed approachable, easy to understand information from trusted experts that she could actually use. Her family and friends didn’t know exactly how to help or what to say. That’s why she’s written, in her own words, “the badass warrior lupus advocate book” The Girlfriend's Guide to Lupus. Written with a lighthearted and humorous approach to comprehensively describe the realities of lupus, the book is a fantastic resource not only for those diagnosed with lupus and looking for answers but also for those who care for them.
Recommendations:
TV Show: Shrinking
Books:
- The Girlfriend's Guide to Lupus: How to Control your Sh*tty Diagnosis
- What My Bones Know: A Memoir of Healing from Complex Trauma, Stephanie Foo
- As Long as the Lemon Trees Grow, Zoulfa Katouh
Contact Amanda:
Amanda Chay –Your New Lupus Girlfriend
Amanda Chay (@amandaechay) • Instagram photos and videos