Ep. 14 Tiler Turmon and Tanner's 22q story

The way that Tiler found out about her daughter, Tanner's 22q diagnosis is incredible. Two days after Tanner was born, Tiler was sitting next to her daughters crib in the NICU when a geneticist walks by and stopped to take a better look. She introduced herself and said that she had just returned from a conference overseas for DiGeorge syndrome. She informed Tiler that her baby had many of the same features that most patiences with DiGeorge syndrome have and that she should get a genetic test done right way. This was the beginning of Tiler and Tanner's 22q Journey.

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Within this episode we discussed:

• Hemitruncus is a rare congenital anomaly in which one pulmonary artery branch, usually the right, arises from the ascending aorta just above the aortic sinuses, whereas the main pulmonary artery and the other pulmonary branch arise in their normal position.
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• G Tube
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• UCSF Benioff Children's Hospital
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• RSV - Respiratory syncytial (sin-SISH-uhl) virus, or RSV, is a common respiratory virus that usually causes mild, cold-like symptoms.
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• Ear tubes are tiny, hollow cylinders that are surgically inserted into the eardrum. This opening enables drainage of the middle ear, allows air to flow into the middle ear and prevents the buildup of fluids behind the eardrum
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• CalmiGo is a patented technology-based device that provides immediate drug-free relief in moments of anxiety, stress, and panic attacks.
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• BOOK - Quinn Bradlee - A Different Life: Growing Up Learning Disabled and Other Adventures
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• The Lab School - Washington DC
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• 22q Family Foundation
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• SONG - Pink - "I Am Here"

If you would like to contact the 22q Podcast with any questions, comments or if you are interested on being on this podcast email Becky at 22qpodcast@gmail.com. Don't forget to subscribe and share this podcast to help raise awareness about 22q. And never forget 22q family that YOU are not alone.

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