Bonus Episode: The Diagnosis Struggle – Medical Gaslighting & Patient Power Between Season 3 and 4, we're bringing you a powerful bonus two-part episode that dives deep into the real-life chaos of the diagnostic journey. In Part 1 , Rachel and Tina get real about medical gaslighting—the subtle (and not-so-subtle) ways patients are dismissed, misheard, or told "it's all in your head." From endless referrals to the emotional exhaustion of chasing answers, they unpack the frustration of being b...
May 20, 2025•1 hr 20 min•Season 3Ep. 57
Season 3 Finale: Reflecting, Re-Capping, and Soul Healing In the first half of our Season 3 finale, Rachel and Tina celebrate their first full year of the SpoonFull of Strength podcast! We look back at some of our favorite moments, highlight a few unforgettable Spoonies we've had the honor to meet, and share the biggest lessons we've learned over the past year. Plus, we re-cap the Top 5 most popular episodes from our very first year! In the second half, Rachel leans on Tina to dive into her jour...
Apr 29, 2025•1 hr 9 min•Season 3Ep. 56
In this powerful two-part series of SpoonFull of Strength , we explore the heart of communication, resilience, and perspective through the lens of chronic illness. Part 1 features Rachel and Tina as we dive into the often challenging—but incredibly important—topic of talking to children about chronic illness. We break down communication tips based on age, share helpful books that can support these conversations, and discuss how to gently involve kids in your chronic illness journey while still p...
Apr 22, 2025•1 hr 11 min•Season 3Ep. 55
In this two-part episode of SpoonFull of Strength , we dive into the world of physical therapy and the patient experience. In Part 1 , Rachel and Tina sit down with physical therapists Kyle (a general and sports PT) and Jessica (a neuro specialist) to talk about the unique challenges Spoonies face in physical therapy. From the importance of pacing to the need for personalized care, Kyle and Jessica offer valuable insight—and practical advice—on how to find the right physical therapist who unders...
Apr 14, 2025•1 hr 8 min•Season 3Ep. 54
In this two-part episode of SpoonFull of Strength , we explore alternative therapies that go beyond traditional medicine to help manage chronic illness. In Part 1, Rachel and Tina open up about their personal experiences with therapies like acupuncture, cupping, massage, and vitamin supplementation. They share how each approach has (or hasn’t) helped them manage symptoms like fatigue, inflammation, and pain—and why being open to non-traditional methods can make a big difference on the healing jo...
Apr 08, 2025•1 hr 14 min•Season 3Ep. 53
Romantic relationships can be challenging, but adding a chronic illness into the mix brings a whole new layer of complexity. In this two-part episode, we explore how chronic illness impacts relationships—communication struggles, feelings of guilt, intimacy challenges, and the importance of support. In Part 2, we talk with Jessica Krauser , a dedicated advocate for the Parkinson’s community, wife, and mother of twins, who was diagnosed with Parkinson’s at 37. We discuss her journey with Parkinson...
Mar 25, 2025•1 hr 12 min•Season 5Ep. 51
In this two-part episode, we explore the healing power of writing and journaling with chronic illness. In Part 1, we dive into how putting pen to paper can help process emotions, reduce stress, and improve mental health while navigating life with chronic illness. In Part 2, we welcome our Spoonie guest, Rebecca, a former nurse who was diagnosed with Hypermobile Spectrum Disorder and POTS after her second pregnancy. On New Year’s Day 2024, after dealing with COVID, Rebecca started "conscious dump...
Mar 17, 2025•1 hr 12 min•Season 3Ep. 51
Self-esteem can take a major hit when living with a chronic illness. In part one of this episode, Rachel and Tina open up about the emotional challenges of maintaining confidence while managing unpredictable symptoms. They discuss the mental weight of chronic illness, balancing self-esteem struggles while facing weight changes, and learning to cope with a body that no longer feels like their own. In part two, we welcome Nicole, a gastroparesis warrior and mother of two, who shares her raw and ho...
Mar 11, 2025•1 hr 19 min•Season 3Ep. 50
🎶 New 2-Part Podcast Episode: Music as Medicine! 🎶 In Part 1 , we sit down with Rachel and Tina to explore the incredible power of music as a form of healing. Whether it’s finding comfort in lyrics, using music to regulate emotions, or discovering new ways to cope with chronic illness, they share their personal experiences with music as medicine. 🎵💙 In Part 2 , we welcome Cerys , a podcast host and producer from Cardiff, Wales!✨ Cerys was diagnosed with Limb Girdle Muscular Dystrophy 2i at a...
Mar 04, 2025•1 hr 7 min•Season 3Ep. 48
We want to acknowledge that addiction can be difficult for some listeners. If you find it triggering, feel free to skip ahead to 41:30 to hear our Spoonie story of the episode—Lauren’s journey with Conradi-Hünermann Syndrome. In this powerful two-part episode, we welcome back Bill from Episode 35 to dive into an important conversation about addiction. Bill opens up about his personal journey, the struggles he faced, and the hard-won lessons that helped him in recovery. He also shares heartfelt a...
Feb 25, 2025•1 hr 25 min•Season 3Ep. 48
In this two-part episode, we dive into the emotional journey of grieving your old self when chronic illness or sudden health changes turn life upside down. In Part 1 , Rachel and Tina open up about the rollercoaster of emotions that come with physical progression or receiving a new diagnosis. They share their personal experiences, the challenges of adjusting to a new reality, and the ways they’ve learned to navigate loss while finding hope. In Part 2 , we welcome Emily , who at just 26 years old...
Feb 18, 2025•1 hr 6 min•Season 3Ep. 47
In this two-part episode of SpoonFull of Strength , we take a deep dive into the portrayal of chronic illness in Hollywood. In Part 1, we explore how TV shows and films depict chronic illness—what they get right, what they get wrong, and the impact of these portrayals on public perception. We also highlight celebrities who use their platform to raise awareness and advocate for those with chronic conditions. Plus, stick around for a list of must-watch movies and shows featuring chronic illness. I...
Feb 11, 2025•1 hr 5 min•Season 3Ep. 46
In this special two-part episode, we dive into the crucial role of nutrition for the chronic illness community. 🌿 Part 1: Rachel and Tina explore the impact of nutrition on managing chronic conditions, sharing their personal experiences and insights on how food choices can support overall well-being. 🧘♀️ Part 2: We welcome Roxanne , a certified yoga teacher and holistic nutrition health coach who has been living with lupus for 14 years. She shares her mindfulness-based approach to health , of...
Feb 04, 2025•1 hr 15 min•Season 3Ep. 45
🎙 Season 3 of SpoonFull of Strength is almost here! 🌟 Premiering February 4, 2025, this season dives deeper into the challenges, triumphs, and untold stories of life with chronic illness. This season, we’re bringing you real conversations and expert insights. This season, you’ll meet incredible guests who'll share their journeys with resilience and humor. Plus, we’re tackling topics like romantic relationships, addiction, nutrition and more. Tune in for a season full of inspiration, laughter, ...
Jan 22, 2025•1 min•Season 3Ep. 1
In the final episode of Season 2 and 2024, we wrap up the year with laughter and resilience. In Part 1, Rachel and Tina share how humor can bring light to the challenges of living with chronic illness. From embarrassing moments to laugh-out-loud jokes, we explore the healing power of laughter. In Part 2, we talk with Christie, a resilient warrior who faced a breast cancer diagnosis while navigating life with multiple sclerosis. Christie shares her journey using stem cell therapy for her MS and a...
Jan 22, 2025•1 hr 15 min•Season 2Ep. 44
In our penultimate episode of Season 2, Rachel and Tina dive into the journey of finding purpose after a chronic illness diagnosis. Whether you're still working or unable to work due to your condition, this episode explores the profound question: "Why did this happen to me?" In part two, we speak with Tim, a Crohn's warrior who has transformed his experience with chronic illness into purpose through his website, InvisibleCondition.com. Tim shares how he built a platform where people can find sup...
Dec 24, 2024•1 hr 3 min
This special two-part episode dives into the challenges and strategies for traveling and living with chronic illness. In Part 1, Rachel and Tina share valuable tips and tricks for traveling safely while prioritizing your physical health. In Part 2, we meet Chloe, who opens up about her journey with multiple chronic illnesses, both physical and mental. Residing in Australia, Chloe offers a unique perspective on the differences in healthcare systems between Australia and the U.S. She shares her da...
Dec 17, 2024•56 min
In this two-part episode, we explore the healing power of hobbies and their role in providing an outlet for those living with chronic illness. In Part 1, we discuss how hobbies can improve mental well-being, reduce stress, and create a sense of purpose. In Part 2, we’re joined by Abe, a neurodivergent therapist who shares his journey with ADHD and mental illness. Abe dives into how his personal medical history has shaped his approach to therapy and how he helps others navigate their challenges. ...
Dec 10, 2024•1 hr
In this two-part episode, we're tackling the unique challenges of the holiday season and shining a light on a chronic illness journey. Part 1: We dive into practical strategies for managing the holidays with chronic illness. From setting boundaries and adjusting expectations for family gatherings to battling fatigue and finding moments of joy, this discussion is packed with tips to help you thrive through the season. Part 2: We’re joined by Kimberly, who shares her journey living with Ankylosing...
Dec 03, 2024•1 hr 1 min
This week on SpoonFull of Strength, we dive into the world of physical activity and chronic illness. In Part 1, Rachel and Tina share their insights on the unique challenges of staying active while managing chronic conditions. In Part 2, we meet Caitlyn, a courageous 16-year-old living with POTS (Postural Orthostatic Tachycardia Syndrome) and AMPS (Amplified Musculoskeletal Pain Syndrome). She opens up about the realities of balancing high school life and chronic illness, showcasing her incredib...
Nov 26, 2024•54 min
In this heartfelt episode, we dive into the impact of chronic illness on family dynamics. In Part 1, Tina and Rachel share their insights on how relationships within a family evolve after a chronic illness diagnosis. In Part 2, we hear from Diana, the inspiring mother of Gaby, who lives with multiple chronic illnesses. Diana opens up about Gaby’s strength through numerous surgeries and the resilience they’ve built together as a family. Follow Diana and Gaby's journey here: https://www.instagram....
Nov 19, 2024•1 hr 6 min
In this episode of SpoonFull of Strength, we dive into the powerful role of spirituality in managing life with chronic illness. From religion and meditation to yoga and mindfulness, we explore how finding faith—whether it’s in a higher power or within ourselves—can offer strength and resilience. We discuss the ways spiritual practices can bring peace, perspective, and purpose amid health struggles. In the second half, we’re thrilled to welcome Di, also known as Di the Yoga Witch. Di shares her d...
Nov 12, 2024•1 hr 1 min
In this two-part series, we dive into the challenges of managing multiple chronic illnesses and the emotional weight that comes with it. In Part 1, we speak with Rachel and Tina as they share their experiences juggling numerous diagnoses. They discuss the mental overload, coordinating care between multiple specialists, and making sure everyone is up to date on their conditions and symptoms. Their conversation sheds light on the complexities of managing overlapping symptoms and maintaining their ...
Nov 05, 2024•1 hr 22 min
In today’s episode, we’re joined by two inspiring spoonies! In Part 1, Kait from Season 1 returns to share her expertise as an OT, breaking down the '4 P's' of energy conservation—practical tips to help you save your spoons. In Part 2, Bill opens up about his life with Neurosarcoidosis, from being a star lacrosse player to enduring seven brain surgeries. It’s a powerful story of resilience, adaptation, and finding strength in the face of life-changing challenges.Follow Bill on Instagram at bmac3...
Oct 29, 2024•1 hr 3 min
In this episode of SpoonFull of Strength, we dive into the importance of advocating for your health. In the first segment, Rachel and Tina share their experiences and tips on how to take charge of your healthcare journey and stand up for your needs. In the second part, we interview Rachel, a resilient woman living with Narcolepsy and Cataplexy. She opens up about her long road to finding the right doctor, the challenges of managing her condition, and how music has become her powerful form of sel...
Oct 22, 2024•1 hr 5 min
In this special, supersized episode, we bring you two incredible stories of resilience from women living with Chiari Malformation, each with their unique journey. First, Kristina shares her experience of losing the ability to walk as a teenager, being confined to a wheelchair, and how, after years of searching, she found the right doctor who helped her regain the feeling in her legs. Today, she's a wife and mother, embracing life fully. In the second half, we speak with Joanne from North Wales, ...
Oct 15, 2024•1 hr 20 min
In this two-part episode of SpoonFull of Strength, we explore the emotional rollercoaster of living with a chronic illness. In part one, Rachel shares a deeply personal account of her journey after an unexpectedly tough doctor’s visit, as we discuss the highs and lows of managing chronic illness. In part two, our Spoonie Spotlight shines on Charu, who opens up about her life with Primary Biliary Cholangitis (PBC) and Autoimmune Hepatitis. Charu's inspiring story of navigating chronic illness whi...
Oct 08, 2024•1 hr 8 min
In this inaugural episode of Season 2, we dive deep into the exciting changes we've implemented to bring you a fresh and engaging listening experience. Join us as we discuss the importance of making difficult decisions to prioritize your chronic illness, even when it means saying goodbye to familiar routines. Rachel shares a personal story about her MS tattoo and the hilarious mishap that almost led to a very different design. Get ready for a candid conversation about self-care, resilience, and ...
Oct 01, 2024•47 min
In our Season 1 Finale, we take a heartfelt look back at how SpoonFull of Strength began, celebrating the incredible guests who've shared their stories with us. We highlight some of our favorite episodes and much more! Plus, we reveal the lucky winner of our custom hoodie giveaway. Stick around for some fun outtakes at the end of the episode! Shop the Etsy Shop here: https://spoonfullofstrength.etsy.com Big thank you to our Spoonies that helped us out this year! Please give them a follow below: ...
Aug 29, 2024•1 hr 3 min
In our penultimate episode of Season 1, we dive into the perceptions surrounding chronic illness. We explore how we viewed our conditions before receiving a diagnosis and how those perceptions evolved over time. We'll also discuss the impact of disease progression on personal identity and how society often perceives those living with chronic illness.
Aug 27, 2024•52 min
